Hi All
Hope you are all doing ok. After a few weeks of hospitalisation due to infection my consultant says I need to start treatment this is earlier than he planned.He offered me a standard treatment
venetoclax and obinutuzumab or to partake in a clinical trial from cologne university, I have chosen the trial and await tests to be accepted difficult time at the moment for me, just wanted to touch base with everyone. Regards Anita
Hi Anita,
I’m one of the forum volunteers, it’s lovely to meet you here. Thank you for checking in with us. I’m really sorry to hear you’ve had such a difficult few weeks, especially with the infection and the sudden change in your treatment plans. That’s a lot for anyone to deal with.
It sounds like you’ve had some big decisions to make, and waiting to hear about the trial can be quite an emotional time. I hope the next steps become clearer for you soon.
Please know you’re very welcome here, and we’re all here to listen and offer support whenever you need it.
Take care, Ali
Thank you Ali I appreciate that regards Anita
Hi @Anita64. Following from what @alisonnoble has said, I think everybody on here understands the anxiousness of the waiting that is so often is a huge part of our journey and the most difficult.
I hope you find the from really valuable as there are so many people who understand how you’re feeling.
I have copied the link to the blood cancer support line. It’s so helpful if you ever want to talk thing through. We are always here to listen and share and you can say how it really is For you.
Please keep posting
Nichola x
Thank you Nichola
Regards
Anita