Hi my husband was recently diagnosed with stage 4 triple hit lymphoma a very rare form after 5 years of watch & wait it’s very frightened as treatments are not guaranteed and he’s starting chemo over 60 years old any success stories as when you look on line it’s actually very bleak prognosis .
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Hi @Pavlou65 and welcome to the forum.
I’m really sorry to hear the news. It must be a tough time for you both and a lot to process.
It’s so hard to not Google and look at prognosis isn’t it. I know I did.
What I would say is that each journey is different and experiences can vary.
I hope there will be others who can share their experiences. Remember, the support line is there for you and your husband if you need it.
How to contact Blood Cancer UK | Blood Cancer UK.
Please take good care of yourself and keep posting. It’s important you have this space to share 
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Hi @Pavlou65
I feel for you and know how your brain must be racing. It is like a ‘fight and flight reaction’ when you get the news and yet very little action required from us so all the energy runs around in our heads and that especially at night in the dark. Do know that it will ease in time. We understand and many of us have been there so feel free to ask those questions and share your woes we will try to help you if we can. I found putting my questions down on paper so that I could have them with me when I went to an appointment was helpful. The booklets which cancer charities produce are accurate and very comprehensive too. Blood cancer and Macmillan Cancer are good sources. These are often more helpful than some websites.
Thinking of you and wishing you well.
Grandma Jo
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It’s a very difficult time right now happened so quickly with the transformation just wandering if anyone has experienced this and went into remission ?
Sorry to hear. My loved one just died a few days ago from the same disease. She received one round of chemo, but is too weak to cope with the remainder (chemo for aggressive cancers are harsh). Also, many double and triple hit lymphomas are either already or will become refractory (relapsing during treatment, not later) to chemo. That happened to her. The doctors ceased treatment thereafter, because no benefits to further treatment. From thereon, she did some radiation, but systemic disease went out of control in days. From admission to death was about 2 months. Sorry for the bad news.
Keep an eye out for CNS disease - it can happen very fast despite CNS prophylaxis. Also, transformed indolent lymphoma into aggressive lymphoma is not generally treatable… This is because the cells have accumulated a large number of mutations that make it likely refractory to treatment. De novo is easier to treat, but for triple-hit lymphoma, the median survival is still very short, like 4 months.