WM diagnosed

I’ve recently been diagnosed with Waldenstrom’s macroglobulinaemia & just wanted to see if there is anyone on here with own experience of WM


Hi @Lot I am so glad that you have found us and I am sure that someone with WM will be able to help you more than me.
There is also information on the Blood Cancer UK website and if you would like to talk to someone the Blood Cancer UK support line is there for you.
What I think so many of us might share is the fear and shock of our diagnosis.
Therefore take lots of care of yourself and I look forward to hearing more about you.

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Hi@Lot,welcome to the forum ,how are you?
I have IgG kappa and on "Watch and Wait"I hope that you are doing OK with your diagnosis and that someone will be able to share their experience with you. As @Erica says there is some useful info on the BCUK website ,especially on taking good care of yourself
All the best

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A warm welcome to you @Lot. Thank you for starting this topic. I hope you’re doing ok since your diagnosis? You may also find it useful to read through our other topics about WM, here - Latest waldenstroms-macroglobulinemia topics - Blood Cancer UK Forum


Hi @Lot I have been thinking about you and just wondered how you are feeling and doing now?
Look after yourself

Hi Erica
On 2nd cycle of treatment & not doing too badly. Had to have 2nd blood transfusion as very anemic but otherwise taking every day as it comes - some better than others!!

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That’s good news @Lot.
Taking every day as it comes sounds jolly good to me, that is all anyone in this world has got.
You look after yourself and be very kind to yourself and celebrate the little wins.
Please keep posting.

Hi @Lot how is your treatment going now and how are you feeling?
Look after yourself