Your most annoying cancer side effect

This was last weeks top five, and it seems to be the week of new releases, Taylor Swift must not be releasing anything this week, so everyone is having a go :wink:

New at number 1 is the Beach Boys with “Wipe out”

Another new entry at number 2 is Leona Lewis with “Bleeding love”

Also new at number 3 is the ode to aches, Billy Ray Cyrus (who’s daughter inherited his hair style sense) “Achy Breaky Heart”

Up one place to number 4, the celebration of looks, James Blunt with “Your Beautiful”

And finally at number 5, The Travelling Wilburys with “You tool my breathe away”

@Jimbo165 when you visit the guy with the machine that goes PING! ask him for a free MOT retest given the changing symptoms. I spent a fortune on gum treatments for bleeding gums only to discover it is one of the many symptoms for Polycythaemia vera (PV), as is heel pain caused by uric acid (gout) I bet it is worse in your right heel, the one you use the most for driving.
@Marylin bruising and healing times are a nightmare as is that shortness of breathe. Enjoy your garden.
My big one this week has been mental fidgets and the feeling of someone standing on my chest.

Good luck everyone

Good evening @Duncan, and everyone else. Just an update on my poorly feet!
I’ve been to see the foot butcher, sorry, I mean my Chiropodist, this evening and she has diagnosed Plantar Fasciitis just to add to the fun and games.
I managed to finish work almost on time which allowed me the opportunity to get home, showered and changed in to clean and dry clothes after today’s almost permanent rain. I’ve been wetter than a fish’s wet bits today and it would have been horribly unfair of me to turn up “ponging” at the Chiropodists. I mean even I don’t want to be that near to my feet, hence me being about 6’ tall!
New arch supports are on order and we shall see how that works out.

I’m back at LRI to see one of the consultant’s team on the 26th of this month so will be mentioning this latest developments then.

Meanwhile, take care, stay safe and be kind to yourselves.

Jimbo165

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Oh @Jimbo165 sorry to hear about your twinkle toes not twinking another cross to bear.
Be very kind to yourself and please do keep us posted

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@Jimbo165 good luck with the recovery, my ex wife had this after loads of trips to various specialists, not. In the end, part of her long extended pain with Plantar was down to her breaking her leg when she was young. One leg was just slightly longer than the other, hence a long term gait issue.
It is a slow as she goes recovery.
@Erica just nipped on the the NHS website, the bad news is @Jimbo165 style and his fashion sense is going to be severely compromised in the coming weeks :wink:

“X do not walk or stand for long periods
X do not wear high heels or tight pointy shoes
X do not wear flip-flops or backless slippers
X try not to walk barefoot on hard surfaces”
This is a wearing down pain so rest easy when you can and sending you my long lens, being 6’3", its the only way to check if I have matching socks on :slight_smile:

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Ah so it was plantar fasciitis, @Jimbo165! I’m glad you’ve got that clarified. It’s such annoying pain. If my experience of it is anything to go by it will recover but be patient.

I got myself some indoor EVA Birkenstocks and wore them at all times to support my arches and they really helped. There’s another brand called Oofos I think that are meant to be good too. So long as you support those arches!

My dad, a retired chiropodist (poor him, all those feet!!!), also gets plantar fasciitis from hiking and now swears by his Hokas. I’m currently a fan of Altras as they are “zero drop” as in their heels aren’t higher than the toes. Super comfy!

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Jimbo 165 it is good you have arch supports ordered. I found them a real help with the plantar fasciitis. I also found some exercises on line that helped. It does settle with time as Duncan has said but I remember it being quite uncomfortable and painful at times. Wishing you a quick resolution.

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Crocs have cured my foot problems, I wear the the lined crocs as slippers and the unlined ones in summer. As I wear my left heel down very quickly. I find them easy to replace in fact I think it is a good idea to check that your shoes have not become worn down in different places as this seems to cause me lknee and foot problems.

Sadly,y husband of 59 years has died last Saturday morning ,he he was very understanding of Polycythaemia vera (PV) and its side-effects. I am know now left to battle alone. Although my son and daughter and granddaughters are all very supportive. I shall miss him greatly.

Amongst many things to do I must book the latest covid jab appointment. Another sore arm. Thishasbeen a dreadful year so far.
Marylin

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Oh Marylin, I’m so sorry to read your heartbreaking news about your beloved husband. Sending lots of love :broken_heart::revolving_hearts:

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Marylin So sorry to hear of the death of your husband. Thinking of you and sending you hugs and love

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Oh @Marylin I am so sorry to hear that your husband has passed away, my thoughts are with you and your family. 59 yrs is a very, very long time.
Please do use us to share your thoughts, feelings, practicalities and what is going on for you.
Also to mull over things you would have with your husband about your medical appointment.
Really be kind to yourself and there is nor right or wrong way to grieve and everyone does it in their own way and please do keep posting

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Dear @Marylin, I am so sorry to read of your loss. It feels like there’s nothing I can do from over here, but I hope you have lots of support right now closer to home. Please let us know if we can support you in any way. If therapy is something you might consider, it can be really helpful when experiencing bereavement and grief. BACP has lots of lovely counsellors and therapists. You can ask your doctor to refer you for short-term therapy via the NHS too. Lastly, don’t forget you can call Blood Cancer UK on 0808 2080 888 for support.

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Thank you all for your very kind words. They are very much appreciated. Sadly I have more bad news. My lovely niece died four days after my husband …

I am struggling a bit as my treasure of a carer is on a weeks holiday, and despite much help from the family I am I am finding it very difficult to cope, just getting cereal and yoghurt togethe4 for my breakfast causes my oxygen stats to drop to 82 and I fall asleep again soon after I am just so tired. My son will be arriving from New Zealand on Wednesday so he will help me until my carer returns. I think I am brain tired as well. There is so much to think about, decisions to be made, and coping with visits from friends and neighbours, the poor dog is missing him and follow me around listening to my moans and groans. My knees are very painful at the moment.

I am seeing the pulmonary hypertension consultant this week. Perhaps they will have better news for me, fingers crossed. Marylin

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Oh @Marylin you are having an unbelievably difficult time at the moment and I am so sorry for you loosing 2 such great loved ones.
Please do ask for and receive help, especially as your your son is coming over.
Yes, visits from friends and neighbours I also can find exhausting, but I have to remember that their intentions are good and everyone is floundering and not knowing what to do or say, i expect, even your dog.
And then your carer is away as well.
Please do let us know what the pulmonary hypertension consultant says.
Please do use your forum family too, you are a very valued part of us. You can say how it really is to us.
The Blood Cancer UK support line is also there for you on 0808 2080 888.
Sending you so much love and virtual hugs and I am thinking of you. xxx

Very bad anaemia, I have multi myeloma and i dont know if it is the treatment or the cancer causing the anaemia. Have been on transfusions every few weeks along with injections to try to give the haemoglobin a boost. The anaemia causes severe tiredness and fatigue. I was diagnosed last June and was started on a RADAR Trial to prepare me for a stem cell transplant, regretfully the trial failed me and had to go on second line treatment of DVD. Went to Aberdeen for a stem cell harvest at the changeover of treatments, now been told the DVD treatment may be failing also. I speak to consultant tomorrow, he has suggested a trial of Cart t cell therapy at Glasgow. Hoping he confirms that I am offered the trial.

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Hi @Stephen1 I am so glad you have found us and it sounds that you are being well cared for by your consultant.
Please do let us know how it goes with your consultant.
The Blood Cancer UK is there for you on 0808 2080 888 and you are now part of our forum.
Perhaps write down all your fears, questions and practicalities and perhaps be pleasantly assertive for the outcome you would like, unless there there is a medical reason why not.
Take lots of care of yourself and keep posting how you are.