Acute myeloid leukaemia

Fab! Thanks @Erica :blush:

They always have the radio on in the day unit so to pass the time we have come up with a blood cancer playlist. So far we have…

Staying Alive - John Travolta

Bad Blood - Taylor Swift

I Will Survive - Gloria Gaynor

Spinning Around - (for the blood vials) Kylie Minogue

Feel free to add to the list :blush:

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Woo hooo! :heart_eyes:. We did it! @Erica and @Fifimac . We met the lovely @Fullofbeans and it was such a special and lovely time.

As promised - here’s our selfie…

@Fullofbeans - thank you for today - it meant so much and we hope you are home safe :blush::two_hearts:


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Hi @Fullofbeans @SarahMum & gorgeous Danae

Love this pic :blush::blush::blush:

I’ve got to admit you’ve made me feel very emotional :kissing_heart: what a lovely happy photo :smiling_face_with_three_hearts:
I’m so pleased not only did the two of you lovely ladies meet up but Danae got to catch up too.

I hope you all had a real good blether , isn’t this wee group just the best :blush::pray:

How is Danae feeling today ?

Much Love to you all and thanks for sharing x x x

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So wonderful to meet the lovely pair, Danae and @SarahMum today! It really was special. Great to have a catch up in person - was so easy to chst to you both. And lovely to see Danae’s beautiful smile (And Sarah has one too, under tge mask!)
Really hope the pain eases off soon Danae, and that you’re out of there early next week.

Back home safely thanks - FOUR hours in traffic though! Accidents, road works, rain - nightmare! But got home to my husband newly arrived back from sea. Happy days!

Speak soon - and fab pic! Thanks for posting. :heart_eyes: Xxx

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Brilliant, I love it, I will do your links for you ( I am only showing off because it is the only slightly technical thing that I can do on here). @SarahMum and Danae.
John Travolta - Stayin Alive (Music Video) - YouTube
Bad Blood - Taylor Swift (Lyrics) :musical_note: - YouTube
Gloria Gaynor - I Will Survive - YouTube
Kylie Minogue - Spinning Around (Ai HD) - YouTube
Great songs so apt and stunning videos.
Oh, give me time to add to your list and keeeeeep thinking xxx

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Great song choices @SarahMum. I would also include RISE UP by Andra Day. It was sung by the ā€œB Positive Choirā€ on Britain’s Got Talent to raise awareness of the importance of donating blood. As someone who has received numerous donations of blood I am so grateful to the donors. Sending warmest wishes to you and Danae. Willow xx

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Hello :wave:
What a treat to see the three of you as I start work today. So incredible to see you meeting in real life and how this forum brings good people together.
Glad you had a lovely time together and wishing Danae a swift recovery.
Best wishes
Gemma

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Oh @Willow here’s your link
Andra Day - Rise Up (Lyrics) - YouTube
Another perfect song, you always come up with them

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You never know, @Fifimac - we might all get to meet up yet. I hope so. :smiling_face:

It was very moving to meet people who matter to me here. :two_hearts:

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I’m not very good at thinking of song titles, Danae, @SarahMum and @Erica - but this lyric went through my head multiple times during chemo:

ā€˜I have chiiiillls, they’re multiplying.’ :sweat_smile:

And quite soon after being discharged from Derriford, my husband drove me back up there for an appt, and the early spring sun shone, and I felt relief, and my vitality return, and I heard this song, and it was so beautiful and the lyrics so newly meaningful, I cried and cried. @Fifimac will know this one as it’s so famous in Scotland (particularly at certain football matches) - but the words mean something entirely different me.

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Woo hooo! @SarahMum, Danae and @Fullofbeans (and of course copying @Fifimac) what a brilliant, in person selfie, I am so jealous, so special to be able to meet up in person.
I am also overjoyed that you felt well enough to meet up and take the selfie, Danae.
The 3 Musketeers (@Fifimac your are the 4th Musketeer)
Thank you for the Sunshine, it has arrived here it is a fresh morning with a bright blue sky and even brighter sunshine.
You have made my day, thanks so much

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What a fabulous wee team we’re becoming on this forum :blush:
ā€œ There are no strangers here, only friends we haven’t met yet ā€œ :blush:

@Fullofbeans @SarahMum you’ve already proved this wee saying and it warms the cockles of my heart that you did get to meet and Danae was there also :revolving_hearts::hibiscus:

@Erica I think you may be one of the musketeers too :+1:

Love ā€œ you’re the one that I want ā€œ from Grease :microphone:

Sunshine on Leith is a lovely song :blush:

Much Love x x

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Hi @Fifimac lovely choice You’re The One That I Want (From ā€œGreaseā€) - YouTube
I accept the invite to be a Musketeer, it is a great honour, thanks. xxxx

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My initial thoughts for songs are:
I co-incidentally heard this song lunchtime and it reminded me that I used to sing this when I was fist diagnosed, I just changed the 2nd word in the title and thought the group had an apt name too.
Soft Cell - Tainted Love (or Blood) - Soft Cell - Tainted Love (Live On Top Of The Pops) - YouTube

This song reminds me of the feeling of our forum for me
Gerry and the Pacemakers (no, I haven’t got a pacemaker …yet) - You’ll never walk alone again - Gerry & The Pacemakers You’ll Never Walk Alone - YouTube

Hot Chocolate (my bestest drink ever) - I’ll put you together again - Hot Chocolate - I’ll Put You Together Again (ZDF Disco, 26.03.1979) - YouTube
Lots of love to all xxxxx

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Wow! You guys are all on fire :fire: :blush:. Well done on all the song suggestions. That’s a fab playlist and one we can keep adding to so that DJ Erica can mix and mash up our tracks :microphone::headphones::blush::two_hearts:

Sorry to hear how long it took you to get home @Fullofbeans - there have been some horrible accidents in the past few days so glad you are home safe with your family :blush:

We are still in hospital. Danae is still in huge amounts of pain so they have upped her pain meds to every 2 hours. Would be good to get some neutrophils fired up so she can start to fight infection and we can get home :house_with_garden:. I hate sitting here watching her in pain and there is nothing I can do. As a Mum you just want to fix things.

I have just read out all the songs to Danae and this has brought a smile - she loves them all so thank you all for joining in.

We are so lucky to have each other :blush:. Enjoy the rest of your weekend guys

The (getting there…) DD xx

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Ah, so sorry Danae isn’t feeling much better. This isn’t fair. Come on neutrophils, give the girl a break! Thank goodness for painkillers - although I know they don’t cover the entire painful period. :anguished: And they definitely don’t make you feel any better, either, @Sarah. Come on universe - give the both of them a break!

Sarah, I was looking into 9/10 matches. Lots of people have them and do really well. It seems more common than a 10/10 match. And there’s some really positive stories about every Acute myeloid leukaemia (AML) permutation and journey on the Leukaemia Care website.

Love to you both :kissing_heart: Xxxx

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Oh @SarahMum and Danae as I have heard it said ā€˜your pain is my pain’ and as a mum that is so true @SarahMum, yes, as a mum you just want to fix things.
Danae you sure are dynamic as pain is so, so never ending and debilitating.
Please make sure you tell your team how much pain you are really in.
Loads of never ending virtual hugs whizzing your way pleas use them when needed both of you.xxxxx

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Hi @SarahMum & Danae

I’m so sorry to hear that Danae is still suffering severe pain !
I really hope your clinical team can get on top of it asap , it’s so hard on Danae but also on you Sarah. I wish we could do more but please know that you are both in my thoughts all the time and our little band of ā€œ new friends ā€œ are always here to listen & support if we can šŸ«¶šŸ»

I hope Danae is managing to get some sleep as that is a big help. I always felt bad for my partner while I was going through the transplant. I would waken up and say I felt sick or whatever then quickly go back to sleep. He said I looked so ill and he felt helpless but he was happy that I did sleep so much.

Anyway , I’m really wishing you both well and like @Erica & @Fullofbeans I’m sending so much healing love to you both x x x

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Hi @SarahMum & Danae

How are you both ? I hope Danae is feeling a bit better :crossed_fingers:t2: any news on getting home at all ? x x

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Hi folks

@Erica @GemmaBloodCancerUK @Fullofbeans

Hope you’re all well. I’m just popping in to ask if anyone feels different since their diagnosis/transplant.

I can’t quite put my finger on how I’m feeling but simple things like going anywhere, meeting up with people makes me feel not exactly panicky but a
bit ā€œ jittery ā€œ as I call it. I used to be a very confident person but as I said I feel more apprehensive maybe than I used to.
It’s just not like me.
I’m feeling fine otherwise thankfully.

Best wishes😊 x x

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