Any tips - ET

Ive been trying to increase my energy levels by taking ferritin, just happened to mention it on my routine check up to be told its dangerous when you have Essential thrombocythemia (ET), as it increases your platlettes, why did no one tell me this.

Has anyone else been told some little nuggets of info along the way?

why does it feel like everything’s a secret, until you ask a specific question


Hi @Lynnrobo I haven’t got Essential thrombocythemia (ET), but my husband and I have both been on medications where we should not eat grapefruit.
As for supplements etc I do just check them out with my nurse first.
I hope others can be of more Essential thrombocythemia (ET) specific help.
I am all for little nuggets, look after yourself and please keep posting

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