Getting better will be the best birthday present you will give your son @Byrnebaby and everything you are going through is hopefully a step towards that.
Take care
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@DuncanB thanks Duncan, I think half my problem is that I’ve not actually been ill, other than side effects of treatment, and I am grateful for that,but it can mess with your head a little 
thank you for you sound advise as always xx
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@2DB @DuncanB @Spangleystar @Ceri_BloodCancerUK @BloodCancerUK-SupportTeam
Does anyone have a definitive answer as to how long we have to notify medics of the need for irradiated bloods after a Stem cell transplant please? Lots of varying answers on Facebook 
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Why don’t you do your sons birthday Tuesday
It doesn’t matter that it’s a day early
I was given a card that I carry in my purse
Mine is indefinitely
I was severely immunocompromised at diagnosis
and I am permanently immunosuppressed
I always make sure I can converse with medics about my situation
For example if I was told I needed blood I would let them know I need irradiated blood and I would also check when the blood arrives that it is.
Even though I felt blurghhhh through transplant I still made sure
I also informed my family and friends and my work colleagues at the time
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At the beginning it was all systems go I was poorly through most of treatment
Once I got through the transplant that’s when it all caught up with me and I asked my consultant for some help.
All your feeling is normal so make peace with that. We all get anxious of the unknown. Once you get there you will wonder why you worried so much 
I always so welcome these thoughts tell them you see them and then ask them to go away or see them as leaves down the stream
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@2DB we celebrated last week, as being quite careful now in lead up to harvest on Wednesday, and whenever Stem cell transplant will be, just feel off not seeing him, haha, will be 1st phone call I make, when I can move my arms again!
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@2db oh ok , thank you! I guess they will talk me through all this once the other side x you’ve had so much to deal with!
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@2db your guidance is really appreciated 2DB, I’m sorry you have gone through such a rough road with this, and you are still here guiding us newbies and I hope you get to smile and laugh every day x
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Pretty normal that still don’t feel ill other than side effects from treatment @Byrnebaby
I remember my wife and I going for an 11,000 step walk the day before admission after a 5 hour drive down to Glasgow where Transplant Centre was.
Ignore Facebook would be my advice @Byrnebaby as I see a lot of odd comments about stem cell transplants.
Your clinical team will keep you right on irradiated bloods for as long as you need them.
Only issue would be if you had some sort of emergency admission not related to your blood cancer.
So worth making sure your husband and family are aware
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@Byrnebaby my friend just sent me a screenshot of something on Facebook (we had a deal that she would join a group and filter and share any positive gems) she thought there was someone else going in with the same timings as me, so shared it. I realised it was you, and you were talking about me. I just want you to know that I would never, ever say anything that would deliberately cause you concern and I’m sorry that you saw this conversation as something that was aimed to derail you. I feel so sad about it…
@DuncanB so we do need to notify medical teams for life? I’m really confused 
@Spangleystar im just in a really awful, horrible place at the moment 
and I just needed reassurance off the group I’ve been in for a while,and I was very anxious as to why we were discussing this today, when you must be as on edge as I am, you have been so stoic so far and everything in me has been triggered and just can no longer see a point or future, good luck with everything, I think I’ll leave this forum now, wishing you the best
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Don’t leave this forum, we are here to support each other, and that would be really really sad, this forum is the best as we have the team and nurses in a way that random facebook groups don’t.
I do feel you misrepresented the conversation, which shows me you heard what fit your narrative, so clearly you are in a bad place and for that I am sorry that we went there today.
It is a tightrope and it doesn’t take a lot to wobble either one of us right now.
I’m not into holding on to negative energy, if you could delete the comments (I think you know the posts), we can get back to where we were. How does that sound?
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I don’t know is the honest answer @Byrnebaby and best to be guided by your clinical team.
I and I’m sure many others will agree that staying on this forum is a good decision @Byrnebaby
Remember you have signed up for the forum early in your diagnosis and treatment which in itself is a big achievement.
I only signed up 9 months post transplant and over 2 years post diagnosis when I had the energy to share experiences and support others.
There’s nothing like being able to share thoughts worries and experiences with people living with blood cancers.
As @Spangleystar said you also have access to the @BloodCancerUK-SupportTeam and the wonderful forum support volunteers.
I refer to the whole process of treatment as a bit of a rollercoaster and there’s going to be good and not so good days both physically and mentally.
Whatever decisions you make will be right for you and take time to reflect before you make decisions.
We’re all hear to support each other and give each other a lift when things aren’t so great 
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@Byrnebaby and @Spangleystar I love the support you give each other and it’s ok to be wrong we interpret things differently, I know I do.
My brother tells me I put people in prison 
Our state of mind will make a post seem different whichever state it’s in
We are all just humans and we get it wrong sometimes
Even the bestest of forum friends can move past the posts
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I totally agree @2DB xx
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I’m living my best life @Byrnebaby 
I would even go as far as saying it’s been the best thing that has happened to me
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