Just catching up on all the preparation and very understandable nerves that are being felt prior to these latest treatment steps that you’re taking @Byrnebaby and @Spangleystar and wanted to second what dear @2DB said about loving the support you both offer. It’s invaluable, although I imagine it can feel rather raw too, like today.
I find what you both share personally helpful, as I’m sure other current forum members and future ones will too, as it’s an incredible real-time record of just how much effort it can take to live with these sorts of illnesses and tolerate their treatments. Emotional effort can also be exhausting and use up a lot of our limited energy, as I’m sure you’re finding.
Sometimes the forum reminds me of a large therapy group where we can pop in and out and drop some emotional stuff and then look at it or not within the group, with the Blood Cancer UK team stepping in with boundaries and words of wisdom. We’re all forum members here and we all have this space to share how our blood disorders affect us. That includes the difficult feelings that accompany us and how they make us react, tough as those can be.
May I just say that I hope these difficult raw feelings and anxiety don’t keep you from sharing more around the forum @Byrnebaby, no matter what was said on Facebook. Maybe a good time to consider how public even these private spaces can be.
And I hope @Spangleystar that you feel okay in having challenged what was shared, it can be hard to assert our needs at the best of times, let alone just before going into hospital. Might be the time to save your energy for yourself and your immediate next steps, which you sound super organised for.
Perhaps right now it’s okay to retreat a little so you both can focus on your own individual needs and to conserve some energy for this week’s travails.
It’s not my place to say so I hope you don’t mind me saying but I kind of see you both as siblings on a similar path whilst facing it in your own ways. Not all ‘families’ can agree or get along all the time, but you have those shared experiences that you can come back to when you’re ready.
Also, just a reminder that the Blood Cancer UK team, including Ceri and specialist nurses, should be back tomorrow.
Thinking fondly of you @Byrnebaby and @Spangleystar, you’ll be kept in mind this week as these next steps in treatment occur.

