Enjoy a day conference on Chronic Lymphocytic Leukaemia (CLL)

Lockdown you say, what lockdown? There is no lockdown stopping you learning about CLL when the CLLSA has put the videos of previous conferences on their website. But thanks to the wonders of the YouTube embed tool they have in here we can also see them right here. I did do a search and I don’t think they are on here yet.

The last video is called something like looking to the future. But I am sure we will forgive them that nobody in this set of videos will have predicted what we would said. I am also sure that the future us would quite like to go back to the past and imagine what it was like to be at a conference! And we would tell our old selves to DO a lot ore at the beginning of January, in fact maybe move to New Zealand for a year so you can tour all the tourist hotspots without any other tourists to be with, As NZ are coming out of lockdown and towards full suppression, whilst they need to become like one of those cut off islands I can think of a worse place to be confined to!

I have been intending to get around to watch these, now they are here I may just remember to do so!

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12th December 2019

London Members’ Conference Report November 2019

109 members attended the sixth and final conference for this year. It was held at the ETC Conference Venue! Drummond Street, Pimlico, London. The conference included a pilot session on mental wellbeing developed from the presentation by Dr Katherine Hicks and her team from Addenbrooks.

Members Paul Newis and Sean O’Neil opened the conference with the traditional members’ CLL stories. Both acknowledge the value of having a dedicated charity to support CLL patients and families and to campaign for better treatments.

Colin Russell and Marc Auckland presented a new session on mental wellbeing. This was driven by member feedback and based on the core 3 emotions model presented at the Cambridge Conference by Dr Katherine Hicks and her Psychology team from Addenbrooks. The aim is to develop the session and content in order that it can be used on future conferences and potentially as a session local groups could run. The vision is for mental wellbeing materials and resources to be built up and available on the website.

Marc Auckland closed the morning programme with a CLLSA update including an update of CLL in the UK, new trustees and the charity’s recent rebranding and new website.

The afternoon session was opened by the key speaker Dr Piers Patten MB ChB FRCP FRCPath PhD, Consultant Haematologist and Clinical Senior Lecturer based at Kings College and Guys and St Thomas hospitals in London. Piers discussed the latest treatment of CLL, supportive care and the best way to follow up CLL in 2019.

Karen is an Advanced Haematology Nurse with over twenty years’ experience, twelve as a CLL/Lymphoma Clinical Nurse Specialist (CNS) and works at Guys hospital. Karen started by explaining the role of a Clinical Nurse Specialist (CNS) and Karen went on to emphasise that a CNS should aim to ensure all the information is tailored and understood by the patient and family. Ellie Wellving is also a CNS with twelve years’ experience including CLL treatment working in Kings College. Ellie took over from Karen going on to explain about lifestyle, diet and immunisation.

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Hi Adrian, what a good idea, thank you, it was a great day jammed packed with helpful and up to date information. It will bring back happy memories of being with lots of lovely people !!!