hi guys
Not exactly sure what I’m hoping to achieve by posting but maybe I’ll find out as I write.
I’m Sydney, 40yo Mum of 2.
So, I’ve been feeling crap in varying ways over the past few years. I’ll try to stick to the most recent stuff I think to maybe simplify it…. It’s so hard to know what’s related to what and whether to mention all of it without throwing down red herrings. Wonder if anyone else has this weird red herring concern… like if I mention something unrelated to a doctor, I’m terrified I’ll send them down the wrong path. Never heard anyone mention this ever actually so if you relate, do let me know!
Things I’ve had going on consistently over last few years include: weird sensations- tingling, crawling, burning, itching. Random muscle twitches. Blurry vision. Very drippy nose especially when it’s cold. Joint pain. Bone pain.
Back in March had bloods done due to some thyroid-style concerns from last year. Thyroid seemed fine but my iron a little low (first time in my life) so put on supplements.
Shortly after I was feeling REALLY unwell & exhausted on top of the other many symptoms I had already so I saw a GP. I was at this point thinking MS. He was unfathomably dismissive and clearly chalked up my problems to stress & a wild imagination. I somehow managed the energy to advocate enough to get a referral to neuro who subsequently wanted an MRI of my head. It showed a tiny (probably benign but still not confirmed) pituitary tumour. Had second MRI to confirm that which it did. Then had all the bloods to check if it was producing excess hormones or reducing hormones, both of which were possible. This tumour appears to be doing neither from tests- fine.
June, during the period that all that was going on, I had a trip to A&E due to severe pain in my chest sort of area, specifically under left ribs. I thought it was my heart but nothing to worry about on EEG. Pain settled down and I went home.
June still - saw another GP as still feeling really exhausted & overall terrible, had been sweating profusely at night, hellish insomnia and feeling very emotional. At this point I suspected early perimenopause maybe so doc put me on HRT to try.
HRT didn’t help much and I felt generally worse so came off it after 2 months.
Fast forward to 2 weeks ago, my lower back was absolute agony to the point I could hardly walk and was kept awake with intense pain. This past week the pain shuffled over to the right side. I also had mild rash on front right hip.
3 days ago I noticed very swollen lymph nodes in groin, right side. Never known them this big, there’s 2 and both size of cherry tomatoes. Got straight to doctors.
Apparently it’s shingles but I’m really not convinced that it is. And if it is shingles I’m not feeling comforted that there’s not more going on that’s led to me having shingles. These lymph nodes are not painful btw and the rash is not painful either. I have been put on anti viral meds to see what happens so I’m going with that for now but I’m really concerned I have lymphoma.
Does much/any of my story resonate with you? I guess that’s my question. I’m currently torn between feeling like a lunatic and full of worry about lymphoma.
Thanks in advance for your responses and big love to you all 
