Good morning
I hope this gives hope and reassurance and also I want to thank the amazing scientists, researchers and supporters for making this story possible.
Five years ago on 20 November 2019, my husband was diagnosed with Chronic lymphocytic leukaemia (CLL), which we knew nothing about. This was an enormous shock and very frightening. We all know what happened globally shortly afterwards and my husband shielded for over a year, sent home by his work as it was too risky. About a year and a half ago my husband became very ill, his bloods having deteriorated significantly. He had numerous blood transfusions, had an op for an infection and looked very ill. He subsequently has received a fifteen month course of oral chemotherapy. Yesterday, five years to the day, we learned that this has been wholly successful. He is a picture of health. We have our life back. He is now back on “watch and wait” which terrified us on that first diagnosis but now is a massive relief.
I cannot express our gratitude enough. Here’s to life.
Oh @Elaine thanks so much for updating us, you have both had so much going on +Covid times and now you say that you have your lives back.
Yes, I always celebrate all my wins and I am so grateful for being on 'watch and wait (active monitoring) too.
Really look after yourselves and thanks again.
Hi @Elaine
I’m so incredibly happy to hear about your husband’s journey! It’s truly inspiring to see the power of medical advancements and the resilience of the human spirit. Your story is a testament to hope and perseverance.
I’m glad to hear that he’s doing so well and is back to enjoying life. Please continue to cherish these moments.
Thank you for sharing your experience with us. Your story will undoubtedly bring hope to others facing similar challenges.
Wishing you all the best for the future.
Hi i have been living with Chronic lymphocytic leukaemia (CLL) for 23 years with the ups and downs i find the mental side very hard and the effect on my family i have been in remission for 2 yrs is there any body similar story Robin
Hi @Robin a great big welcome, I also have Chronic lymphocytic leukaemia (CLL) and I was diagnosed 20 yrs ago, 21 yrs next week.
I was diagnosed at 53 yrs old.I reckon my emotions and thoughts have been on high alert ever since my diagnosis, I am far more emotional now. Sometimes my thoughts are logical, sometimes not. I can replay the day of my diagnosis as if it were yesterday.
I went through that Christmas as if I were in a bubble with everyone celebrating around me.
Yes, blood cancers don’t just affect the patients, I think communication is the key.
The Blood Cancer UK support line is there for all of you on 0808 2080 888
I find this forum is the one place that I can say how it really is for me.
Look after yourselves @Robin and I look forward to hearing more about you,