Hello...my first post.....High grade NHL

I’m so glad you have posted to share how you are feeling. When my dad passed away of leukaemia, my 10 year old really struggled. All you can do is be there to listen and answer any questions. Just keep checking in with her. It’s so difficult managing your own emotions, as well as everybody around you. Have you contacted McMillan to see if they can support in any way with your daughter. Cruse are also an amazing charity as well. Just keep them in mind as you may need them at some point.
Watching someone you love get poorly must be just unbearable. I feel so emotional for you all. However, tomorrow will be a beautiful day and will create a beautiful memory for all of you, but naturally will bring some sadness to and that’s ok.
Remember, we are all here for you, for anything you want to share, and off course, the support line if you need a voice at the end of the line.
I hope the sun will be shining down on you all and bring you a day where all of you can share in a beautiful moment to be treasured. When you are ready, please let us know how the day went. I’ll be thinking of you and am sending extra special wishes and the biggest of hugs X

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@Smurf08 I think @Nichola75 says it so well.
Perhaps all you can do is be there for your daughter, keep lines of communication open and make sure she feels part of what is going on with your mum’s condition and safe and secure. It will be such a difficult day for everyone but perhaps especially your parents.
How lovely that the priest is coming to give your parents a blessing/renewal of vows tomorrow.
Have a very special, poignant day tomorrow, I cannot imagine all your mixed emotions and we will be thinking of you all.

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I doubt if anything I say could be adequate @Smurf08 . It’s any awful situation for all of you. The only comparable situation in my life was when we were told my brother only had a couple of weeks left to live. The immediacy of it meant we didn’t know how to react either with each other or my brother and as such we floundered a bit and it was more stressful that it should have been. The only advice I could offer would be to take your lead from your mom as she’s got the biggest burden to bear. I hope you can all be there for each other and get through this. My thoughts are with you.

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Thanks everyone. Yesterday was a lovely but tough day. My mum is deteriorating every day. She is no longer eating or drinking. Has a catheter insitu and is getting a syringe driver soon. Things are starting to feel very real now. I just want to be by her side every minute by I know that isn’t possible as I have to try and sleep and look after my own kids. I just cannot imagine life without my mum and her not being here xx

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I expect yesterday was a lovely but a tough day, but such an important day.
Yes, you are pulled in all directions obviously wanting to be with your mum every moment, but you also have your family, they also need support with their thoughts, feelings and practicalities, you have houses to run and I expect your needs are at the bottom of the pile.
We are here for you, but please try and ensure you look after yourself too.
For me the hardest thing is to ask for help. xxxx

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I was thinking off you. I can imagine it was beautiful but hard. You must have so many thoughts running around your mind.
It must be so tough @Smurf08. So much for you to deal with and so many people who need you. I’m thinking about you to - please take care. I know it’s easy for me to say when you want/need to be in so many places but just look after yourself when you can.
How is everybody else doing after yesterday?

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Talk about this being a roller coaster of emotion!!! A few days ago we thought my mum only had a few hours to live but since the syringe drivers have been started she has perked up and is chatting to us, eating and drinking small amounts. I still know we dont have long with mum but it has been lovely because myself, my brother and sister have moved back to the family home temporarily to spend every time possible with mum. Feels like we are all kids again xx

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I know how sad this is for you and your family but this post bought such a smile to my face thinking of you all together, especially as your mum is better in herself. Make the most of those precious moments together. Forever to be treasured X

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Oh.@smurf08 I honestly do not know how you are coping with this emotional rollercoaster that you are on.
I was so touched that you and your brother and sister have moved back home to spend every moment with your mum, make the most of every family moment.

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I really feel for you @Smurf08 but glad you’re all together at this time. In many ways these days will be some of the most precious for you and I hope you all get some comfort.

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Hello
This morning we thought my mum was going to pass away as her breathing had changed and she said that she wanted to go. The next thing she was saying she was hungry and had something to eat.
The same thing happened yesterday morning. We thought we were about to lose her and she perked up.
Has anyone been through similar? Why does this happen? I cannot get my head around this. Not complaining because it gives us longer with our beautiful mum and she is pain free, comfortable and still cracking jokes when awake. She amazes me and I love her so so much x

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That must bring on a roller coaster of emotions! So glad the pain is managed so well though - that must really put your
mind at ease X

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Very much a rollercoaster of emotions x

OH @Smurf08 I just don’t know how you are all managing this oscillation, perhaps all you can do is be there for your mum, however she appears, I am so glad that she is not in any pain. She is amazing and you are all so absolutely amazing too. Keep posting.

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Is that the name for it Erica? Oscillation? I’m away to Google it :see_no_evil::see_no_evil:

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My beautiful, brave Mum died last night at home which was her wish. She was still making us all laugh up until Saturday night. Just showed what amazing strength she had. Cant take it in, I’m heartbroken and I’m going to miss her so so much x

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Hi @Smurf08. I’m so sad to read this. You must all be absolutely heartbroken. From all off your posts it’s is clear what an amazing women she was with an amazing family, and my goodness - what a fighter! She was with you all, at home, as she wished for and I’m so glad you managed to make that happen. You have been so amazing in doing whatever you could to make her time what she wanted it to be, even though it was so hard for you.
I did smile as you wrote about her making you all smile - what a specially lady!
Please please look after yourself. We are still hear to listen and support you in whatever way we can. Sending so much love X

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Oh @Smurf08 I am so, so sorry to hear that your very brave, real fighter, very special mum has died.
I just cannot imagine how you are feeling and you must be so exhausted as well.
You certainly have spent some very quality time with your mum.
We are always here for you as is the support line, their details are above.
Look after yourself, you have been such a very special daughter to your mum

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Thank you. It’s everyones worst nightmare losing a parent. It has only been 7 weeks since we were told mums cancer had spread to her brain. She will always be the strongest person I’ve ever known. The only comfort is that she is at peace and will have no more ill health again x

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Hello. It has been 10 days since my beautiful mum passed away and her funeral is on Monday. I actually dont think it has hit me proper yet, it just feels like mum is in hospital and will bounce back like she did so many times before.
Maybe I’m just in denial, I dont know but I miss her so so much x

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