I think it’s great that you’ve given yourself some space to think things through together. I hope you get some clarity on your thoughts. Nothing like a sisterly chat X
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@Smurf08 I am so glad that you are away fort the weekend in a caravan with your sister, daughter and niece. Just what you need a chance to talk, laugh and cry with family. Treat yourselves you all deserve it.
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Hello. How is everyone?
My anxiety has been through the roof since we were told my mums cancer has spread to her brain. I contacted my GP to have my meds increased so hopefully once they kick in they will help. I’m also thinking about going to The Maggie Centre to talk to someone out with friends and family.
My mum is on steroids which have gave her lots of energy. She has been having clear outs during the night but we just need to let her do what she feels she needs to do.
Whilst she is able we just need to make lots of memories and take her out if she is feeling up to it xxx
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Oh, @Smurf08, I think that you are really doing so, so well, I so admire you.
Such a heartbreaking situation.
I have never been to a Maggie Centre but I have heard such good and caring things about them.
I think that you have come up with a brilliant idea and definitely worth a go, it might really help you.
Yes, lots of special memories and treats for all sounds great to me and a chance for just talking. Spoil yourselves.
Please keep posting what it is like for you, we are here for you.
Hi @Smurf08. Great to hear from you. Everything must seem just crazy at the moment. I’ve heard great things about the Maggie Centres - definitely give them a go. I’d be interested to hear about the support they offer. Please take care X
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Hello, I hope everyone is doing ok.
Things are getting a lot tougher with my mum as we are starting to see her slowly deteriorate. It was 4 weeks ago today that we found out my mums lymphoma has spread to her brain. We have managed to take her out a couple of times which was nice.
My mum is awake a lot during the night so my dad is exhausted. Myself, my brother and sister are taking turns to stay over once a week so my dad can get a sleep. Her brain seems to be going at 100mph so we are going to ask the nurse if she can have a sleeping tablet. I just feel so so sad watching this awful disease take a hold of my mum. I know things are going to get worse as the cancer spreads further. She wants to die at home and we will do everything possible as a family to make that happen x
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Hi @Smurf08. It’s really lovely to hear from you. It sounds as though things are really hard at the moment. What is great to hear is those little snaps of loveliness, for example when talk about getting out a couple of times. Where do you go? The strength of your family also shines through in every post - especially how you are there to support each other. It’s very sad that you all have to go through this. How is your mum managing?
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Went went for a nice walk along the waterfront and got some nice photos.
Mum is struggling alto accept things more and more. She keeps cleaning and having clear outs and buying us all gifts. We need to let her do what she needs to do x
Hi, @Smurf08 it sounds such a tough time for every one of you but I think you are all doing so well and I am so impressed how you are all working as a team for your mum and each other.
It must be heartbreaking to see your mum deteriorating and that there is nothing that you can do about it, but lovely to just have those odd happy memories of taking her out.
All I can say is to take so much care of yourselves, keep posting so we can try and support you and make life as simple as you can around you all at this time. xx
Memories to be treasured! Try and do as many things like that as you can. It must be very difficult for your mum and I suppose you just need to let her do what she needs to. Please keep posting and letting us know
how you are. You are in my thoughts. Please take good care of yourself and each other.
Sending extra special wishes your way and lots and lots of love.
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Thank you. My thoughts are also with others going through this heartbreaking journey xx
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Mum has agreed to get an injection tonight to help her sleep. Her body needs a good rest
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Make sure you all try to get some rest at the same time x
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That’s good news @Smurf08 and hopefully you can all get the rest you desperately need too. I don’t function well with sleep. Thinking of you all.
Thank you. We will rest when we can. My mum and dads Golden Anniversay is in September but we are bringing it forward and having a family gathering next Sunday. It will be an emotional but lovely day for everyone x
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Hi @Smurf08, that sounds like such a nice idea. It’s so important to create those memories together as a family. You all are a wonderful support for each other. Make sure you all look after yourselves too and if you need to talk about what you are feeling and going through, we at Blood Cancer UK support services team are always here for you all.
Take Care
Bav
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Oh @Smurf08 what a lovely idea to bring your parents Golden Anniversary forward to next Sunday, yes, I expect it will be a day of very mixed and conflicting emotions, but I am sure knowing you all it will be a lovely, very special day.
Thinking of you all loads.
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Thanks everyone, you have been a huge support to me x
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Hi @Smurf08 I am sure that we will continue to support you and all your family, take so much care of yourselves and please keep posting when you can.
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Hello
Feeling very emotional today. My 11 year old daughter is starting to struggle with watching my mum deteriorate. My mums speech has started to get worse and she is more sleepy.
We are all prepared for our gathering tomorrow for my mum and dads Golden Anniversary. The priest is coming to give my parents a blessing/renew their vows so it’s going to be a very emotional day.
It’s going to get harder. I miss my mum not sending me text messages so much 
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