Hello...my first post.....High grade NHL

Just heartbreaking @Smurf08. I’m so glad the doctor came out and she is now in the right place. I can’t imagine how you must be feeling. As @Erica said, we are all here for you whenever you need us. How are you holding up - and your mum? Sending lots and lots of love X

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Thank you ladies. You have been a fantastic support. Yesterday I phoned the haematology ward for advice but they asked me to phone 111. After 7 hours of waiting a doctor eventually came out and gave mum an injection to help with the dizziness etc and said see how she feels in the morning.

Then this morning the haematology ward phoned my dad saying they wanted to see my mum. They must have thought about it overnight.
Cancer now in her brain :broken_heart::broken_heart::broken_heart::broken_heart:

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@Smurf08 I hope you and your dad can also be a support for each other. Keep posting updating us of how you all are and what is going on.

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Please take care of yourself and each other and as @Erica says, keep us updated X

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You are all angels x

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Just an update. My mum is getting discharged from hospital tomorrow and the palliative team will take over her care.
Without doing a biopsy they cannot say if the brain tumour is secondary from the nodule on her lung or from her lymphoma.

I just cant comprehend this news. We have no idea how long she has left with us :cry::cry::cry:

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Oh @Smurf08, perhaps there is no answer to how long your mum has left with you, but why not ask her palliative care team what to expect.
However as you know your mum sounds a fighter.
Please keep us updated how you all are.

Hi @Smurf08. That must be unimaginably hard for you all. I wish I had the words but I don’t. Like @Erica said - your mum does sound like a fighter! Sending lots of love your way. Please keep us updated X

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Thanks. I’m sure the palliative team will be an amazing support for my mum and our family. My heart is breaking thinking about whats ahead. Will appreciate every minute with my mum and make lots of nice memories x

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Absolutely! Memories that can be treasured :heart:

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Hi @Smurf08, nobody will ever be able to take your memories away from you, cherish this time all of you. Please let us know how it goes with the palliative care team, Take so much care and why not have lots of special treats.

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Thanks everyone. Sending love to you all x

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Mum is home now and everything is in place with the Macmillan nurses.
Because the doctor wouldn’t say if we have weeks/months left with mum I just dont know what to do about my work. I have been on annual leave this week and due to return in 5 days. If it was going to be weeks left with mum then 100% I would be doing off sick. If it was longer then I would probably continue to go in until mum started deteriorating. I dont even know why I’m beating myself up over this but can you guys understand my thoughts.
I have a feeling it is going to be weeks. Would they be sending out Macmillan nurses now if they thought it was going to be months.
Please ladies some honest answers would be appreciated x

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Oh gosh - I completely understand your thoughts and I think I would be feeling exactly the same. It’s really hard when you don’t know what’s going to happen and that leaves you feeling a bit out of control I can imagine. I just wonder if you have had a discussion with work? Are they understanding?
There are so many things to consider aren’t there and it’s hard one to know exactly what I would do in that situation.
I have a strong thoughts about ‘gut feelings’ and most of the time I go with that. Have you though about calling the support line to talk it through.
This reply has been so hard to write and word well as I know how hard this must be for you :disappointed:

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My boss knows the situation and I’m phoning her on Monday. It’s like I just need someone to tell me what to do coz my head is all over the place. My priority right now should be my mum so why am I even stressing about work. Only a number at the end of the day. I’m too frigging conscientious!!! X

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I really wish I could tell you what to do and wave a magic wand! Speak to your boss on Monday, perhaps have a chat with the McMillan nurses and go from there?

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That’s a good idea thanks. Hope you are good today x

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Not to bad thank you. Keep us updated on how you all are. Sending extra special wishes X

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It sounds as if all your feelings and thoughts are so natural and I hope writing them out here and reading @Nichola75’s replies has clarified things slightly for you.
I know my trouble is keeping thoughts and feelings going round and round on fast spin in my head and not formulating a plan, which usually involves me actually honestly discussing things with someone.
Yes, talking to the Macmillan nurses and then to your boss sounds like a plan to me and then also talking to your mum.
I think you are doing so brilliantly, take care of yourselves and please let us know how you get on.
Has anyone else been in a similar position?

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Thank you. There is no point going into work if I’m going to be an emotional wreck.
Me and my sister are away for a weekend in a caravan with my daughter and niece. My mum should have been here with us. We booked it when she was doing good.
We were going to cancel it but decided that escaping for a few days would do us good. We can laugh and cry and talk things through x

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