Help us create health information on the side effects of treatments

We are creating a new online information resource on the side effects of different blood cancer treatments and are specifically looking for patients who have experienced one or more of the following:

  • Targeted therapy/immunotherapy but not chemo
  • Taking steroids
  • Taking TKIs
  • Treated young and treatment had an impact on their fertility
  • Has a slow-growing blood cancer and is having treatment at home

We’d like to have a couple of calls with you to hear your experiences of side effects with these treatments and together create a new resource for patients on these treatments that reflects the reality of your experiences and any helpful tips or insights you may have for others going through the same. If you are interested and would like to find out more, contact me on . I’m a health information writer for Blood Cancer UK and would love to hear from you. Initial phone calls are expected to take place within the next couple of weeks.


Hi @alice-bcuk what an absolutely brilliant idea and I can see this initiative being expanded in the future. Thank you

Yes - I agree with @Erica. Such a great idea!

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