Hi @Ells from your post you sound it greater ‘spirits’ or is that because the drinks cabinet has taken a battering !!!
I have this image of your mum’s nails, it sounds as if you are doing really well with your course, I reckon you will be able to pursue manicuring in the future.
I am glad your walk went better this week and you are sticking with it, it will not be easy but I think you knew it would not be.
Keep posting and baby steps if you are not ‘legless’
Keep slurping and have a good weekend.
Hi @Erica
Oh yes it sure is 
I’ve but been for a walk yet this week my pain levels have been a bit too high. I over did it at the weekend and then yesterday while Dave was out I thought it would be a great idea to wash my hair separate to the shower as I still like to have him around just in case… Big mistake that was… I knealt on the floor by the bath boy did I suffer yesterday and today my groin well its certainly not mine
Plus I had an incident with a spider which decided to pop out of the washing if only you could of seen me you’d of all been in fits at me… Me and spiders don’t mix well
So tomorrow is another day and if I do make it in the shower later as out little man is here this afternoon for a visit I may get that walk in but I certainly plan to do some more if the course tonight. The next stage is false nails and yes when I see mum next she’s getting a set she loved the manicure and had a hnad massage several nights in a row. I cant be that bad
I’m looking forward to learning about false nails I have everything I need to practice this one even a false hand 
Mum went home Monday the house has never been so quiet without her and the dog… I’m so looking forward to seeing her again… Christmas if not sooner. The Christmas pj’s have been ordered 
… We all had a set last year which I wanted to do and i went to a charity shop and got us all a new Christmas jumper and got mum her first one she usually borrows one of ours if she’s here…
I’ve was feeling pretty rough last night does anyone suffer from acid reflux I had a bad case of it after dinner just after I took my meds they didn’t seem to mix well… Has anyone got any cures I tried everything I knew to do…
Happy Wednesday everyone oh booked my flu jab today just the covid one to do which I’m guessing will be next month
Xx
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Hi @Ells I have this mental image of you and the spider both being the same size, and yes, I did have a good laugh.
I cannot get over you being so organised for Christmas, yes, I have the festive pj’s, a jumper, socks and a tee shirt. I have also got a red patterned long skirt that looks quite festive, it was my mum’s and she died in 1986 !!
Yes, I get acid reflux and it is horrible. I take the cheaper Sainsburys equivalent of Gaviscon, I end up going to sleep sitting up in bed for most of the night and eating extra strong mints.
Look after yourself and have a very happy every day.
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Hi @Erica
It may as well of been of course dave said he’d seen bigger but he had to say that didn’t he I don’t have my spider catcher since he moved out my son is my hero when it comes to spiders in fact both my sons are I remember an incident back in MK when I called for my eldest he came in brandishing a can of deodorant looked at the spider looked at me and said that won’t do it will it mum and went and got a pint glass it barely fitted in that …
Anyhow last night didn’t go according to plan little dude ended up wanting to stay with us he became really clingy and fell asleep on the sofa really early… Didn’t have any dinner came up to bed laid with me for a bit then decided it was good idea to empty the contents of his stomach all over the bed… There was me holding him up calling for dave as he didn’t want to sit up bit being able to move as I was in so much pain from the hair washing incident as a result of it all we now have our bedding in the bath and a new quilt on order. And i didn’t get the shower I was planning to have or do any of my course. But these things happen. One little dude has now been taken home feeling better but still clingy. He’ll be back again tomorrow for the weekend and today I get to see my son who I’ve not seen for a few weeks as he’s been so busy with work and his uni course… And as for Christmas I have to be organised now I don’t work oh yes I have socks but I need to find some of the looser topped ones as my ankles swell…
I think I will have to invest in the liquid gaviscon or cheaper version of that was horrendous the other night I felt so poorly. I guess I’ll have to be more careful with what I’m eating and leave more space between food and meds…
Happy Thursday everyone
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Having another rough weekend with the pain… But it’s either go and do things which BTW I’ve been Christmas shopping this morning and spent daves money it was so much fun I was threatened with minutes by both dave and ashton but on the bright side in a bit more sorted… Got more stocking stuff… This afternoon is going to be resting…
I’ve been taking my inhaler to help my chest since last weekend as its not feeling right hopefully I’ve not got a chest infection coming littlun has a cold I really don’t want to get that off him…
I’m feeling a bit low atm in trying to make the most of everything carry on as much as I can but frustrated with every single person who thinks they know me better than me the early days people, the you’ll be ok people and the just get on with it people work through the pain… Can i just tell the world to leave me alone now
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Oh @Ells please don’t tell us to leave you alone as I so enjoy our posts, your updates and sense of humour!!!
Pain, I find, really drags me down
I can tell that you are a girl for the festive season.
I hope you have not got a chest infection or littlun’s cold.
I seem to be playing catch up all weekend with all little tasks, perhaps I should write more lists, especially ones I can actually read…
Look after yourself and keep posting, have a happy week, next weekend is Halloween and clocks back, I think.
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Sorry to hear you’re feeling low @Ells. How are you doing today? Is your chest feeling better?
What you say about getting frustrated with people is so understandable - those comments, whilst well meaning, can be so unhelpful can’t they!
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Hi @Erica @Alice_BloodCancerUK
I would never tell you to leave me alone I’ve had nothing but support from you.
I do get very frustrated with those people and find it very hard to explain its not just my back I’m dealing with here it’s the blood cancer too both come with similar sets of pain. It’s been 2 months now since the op and nothing is better you’d think by now I’d be better than before the op by now. Unhelpful they are
I just wish they would understand I’m not being negative just realistic now. There comes a time when you know things are going to stay the same ans you have to just deal with it. You want others to catch up with you.
Oh yes I’m very much the festive girl we’re off again tomorrow shopping with littlun.
My chest is OK I’ve got my inhaler it keeps things at bay for now…
I have lists galore all those things I want to do around the house to fit in around the little chores I have right now it’s not happening but one day hopefully I may get to them
Ooh yes always good when the clocks go back especially if we don’t have a little one waking us up 
Happy Wednesday everyone a:blush:
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Hi @Ells so you are going festive shopping today/tomorrow with Santa’s very special little helper.
Been a very different week for me, luckily.
I had an op on my head to remove growths and scar tissue on the top of my previous skin cancer skin graft. I am now sporting a great big plaster on my head and Friar Tuck look.
You might well ask how you can put a plaster on your head, the answer is with great difficulty, but it is staying in situ as we speak. I don’t fancy having it removed much next week.
Luckily they cauterised my head and I will not have to have stitches removed.
Then today I was back at the hospital for my annual rheumatology infusion drip for my osteoporosis.
I am glad to get those two appointments over and now I can have a happy rest of the week.
I wish you the same and enjoy your extra hour of zzzzzzzzz’s
You’ve had such a busy week @Erica. Extra hot chocolate and cake is necessary!
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Don’t you worry they are on the menu @Nichola75
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Thinking of you Erica hoping today goes ok - defo need some treats in store for you after that, as much cake and goodies as you wish. Take care and feeling for you, as you ate the one who always supports with kindness to all on here
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Oh thanks @Jilly20 I am feeling much better today.
The good news is that Sainsburys delivers food and lots of treats tomorrow.
Look after yourself as well @Jilly20
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Hi @Erica
Omg what a week for you it’s been… I hope you’re feeling better… The plaster removal wasn’t too bad I do feel for you having that done…
Hope you had the hot chocolate and cake @Nichola75 mentioned certainly sounded good to me… I sat and ate a whole box of maltesers yesterday totally regretted it today so had a starvation day to make up for it… Mind you I wasn’t very hungry after pigging out last night 
I had a total dumb moment this morning ended up calling the bank about a transaction I swore I hadn’t done… Was hilarious when the fraud people went through it with me and got me to log into my PayPal account and the penny dropped… And i explained what I had done… Never have I been so apologetic I blamed my meds for making me forget it is my favourite fallback
So interesting week we forgot about Halloween so I spent the evening hanging the washing by phone light as I wouldn’t answer the door to the poor children just to disappoint them… I blame dave he does the shopping… Mind you he has been trying to decorate and work plus deal with changing jobs tupee business… Is a lovely thing glad I don’t work anymore… But I do miss the money…
Talking of which I did get some today so have done some online shopping for Christmas which has been a help and we did go shopping with my little helper it was great 1st day well let’s just say thanks to autism it didn’t quite go according to plan my little helper didn’t really want to help he wasn’t really in the mood for shopping got bored and hit the alarm in the lift and we had to explain what had occurred 
so in the end we did a bit of bribery so we could get finished… And we tried again the next day complete change wanted to go in every shop going didn’t want to go home 
everything we bought we had to tell him it was for santa as it was stocking fillers so there were sweets involved bless him its for santa all around the shop…
And what I didn’t know for a whole I had a huge bow on my head until it fell off and then it got put back on and when I asked at the till of it was still there and old lady queuing told me it was and looked lovely so funny… The bow is now with the rest of the Christmas stuff… Oh and another little error of mine is the Christmas pj’s dumb moment not really sure what number this may be they arrived so excited I opened them and found thry didn’t all match not very happy so I’ve looked turns out mine and mum’s match daves and my sons match which is great only one problem dave and my son are celebrating Christmas 2022 
I’ve had several suggestions as to what I can do now… Daves is just leave it… My mate has had the best one which is get a label and cover the 2 make it a 1… My son suggested the expensive route which is get 4 more pairs but with this it poses a risk that I may have another dumb moment and we could end up with a complete different set of pj’s
So in really not sure what to do… Any suggestions…
On a serious side I have now been out for a drive chose a day when my right leg wasn’t too bad… The pain is more on the left leg and left side now same as before the op so well have to see if it’ll improve but good news is I can drive still OK and I didn’t crash took my son home and drove back again… Think dave was worried he was keeping an eye out for me and came straight out when I got back bless him but at least I can go and get my.bloods done on my own again which is one less thing to put on dave…
Any ho I think I’ve bored, rambled, possibly made you giggle or at least smile at my antics this past week…
@Erica I hope you’re doing good 
Happy Tuesday everyone hope you’re all doing good too xx
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Oh @Ells you are really classic and you should write a book.
I have had a real chuckle which is just what I needed.
I was not really anxious about my head op as I knew that it was not as serious as the major skin cancer op with skin graft that I had 5 yrs ago.
In hindsight it was funny, but it wasn’t at the time, but when the hospital nurse had to take the 16 staples out of my head after that op it was the hottest day of that year.
She supplied us both with bottles of water and she really struggled to get the staples out, every one was agony and we were both counting them out. She had to stop when either one of us felt feint. It took over an hour.
Anyway I am getting quite anxious about tomorrow when the GP nurse takes the plaster off my head, it feels welded there, I don’t know how it will go and how much of my head and hair will come off with it. I haven’t got much hair left.
Oh, I really fancy a Malteser now, yes, I know I would not stop at one either.
Isn’t it difficult to remember bank transactions, Amazon is my main one and my mind goes blank when my husband asks about them.
Santa’s little helper wasn’t a great help then, but he definitely thinks that you are Santa’s little helper.
As for your pj’s saga, at least you didn’t get the ones at a bargain price that said 2020 on them.
I would just leave them as they are and it will give everyone a good laugh over the festive period at your expense, then they can be worn again next year by the ‘boys’ and the ‘girls’ can have new different ones.
I am impressed with you driving and I think that feeling of independence is priceless.
Well my hot chocolate bedtime drink is a distant memory now and it is well past my bed time.
Thank you for the entertainment, it is just what I needed, I am still smiling and giggling here, please keep posting.
Happy rest of the week to you and all.
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Some very helpful advice there Brenthebaker! And your mother’s situation is very encouraging for me. I am in the process of lining up all the questions before a Haematologist Appt on November 10th. As I was looking after grandchildren for 14 days immediately after the last Appt, I decided not to take the Hydroxycarbamide until I have seen him again. My get a rap over the knuckles, but I have been taking Aspirin for over 3 months, and think that may already have been a lifesaver!
Basically I am trying not to think too much about it. The list of common side effects has brought up more questions for me, and I need to discuss these with the specialist.
Today I had the first hairdresser haircut in 9 years…a post Covid bob, as it had grown so much! The chair was a massage chair, and having a head massage as I has my hair washed was wonderful!! It is the little things that give one a boost. Not that my budget runs to such pampering normally!
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Yep - a discussion with your specialist is definitely the best way forward! Side effects can be awful can’t they.
I love a head massage. A lovely treat!
Take care of yourself X
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Thank you Nichola75. There are a lot of side effects that don’t worry me, but the possibility of mouth ulcers would impact my singing teaching…so hence my reluctance. Though, of course, on treatment, I may well have to stop. That is is as much of a problem as taking treatment!!! Life throws curved X*@*s…and I am a hopeless catcher!! OOOOeee…interesting I can’t use that word!!
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All’s well @Ells back from the GP nurse. she had quite a job getting the plaster off my head and had to soak it first, plus she and I were soaked and her floor.
She has put a bigger dressing on my head as there is an open wound to the skull (don’t think about it!!) and she does not want it to get infected with my Chronic lymphocytic leukaemia (CLL) immune system and I go back Friday, she could not have been more caring and kept on apologising for the pain she was causing me and was I alright. I now have to wear a scarf to make sure the dressing stays on, very fetching.
Look after yourself, Santa’s little helper
I’m glad she managed to get it off - not glad it was so painful. I have an image of you both soaking wet! Makes it all the better when you have a caring nurse. Treat for you tonight and make sure you look after yourself X
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