@Fifimac sorry to hear of your transplant getting delayed it will be 3rd time lucky.
I have not yet had a Hickman line but have had multiple PICC lines and have experienced infections with spiked temperature in those & from what you describe they tried similar with IV antibiotics and locking antibiotics in the line.
I am currently on the 3rd cycle of the tablet based maintenance chemo @ home. I have also been referred to Renal consultant to see if there is anything they can do to improve my kidneys function.
The QE have been in touch and I am going there on Thursday for another kidney test. If I pass the test then my stem cell transplant will be on or after the 24/07.
Hi @TimE thanks so much for the update, sorry to hear the problems you have had with your PICC lines previously.
You have got a lot going on, I would find it exhausting.
Please let us know how you get on with your kidney test on Thursday and whether it is all go for your stem cell transplant on the 24/6.
Really look after yourself
Itâs never ending isnât it !
I have my new Hickman Line in now and itâs feeling very tender and a tad uncomfortable to be honest.
Hopefully itâll settle soon.
So sorry to hear of all your ups & downs. We could write a book between us all.
Good Luck at your appointments, keep us updated please.
Above all , take care and look after yourself.
Big hugs x x x
Oops sorry go the provisional date of my transplant wrong should have put 24/07.
@Fifimac is there much discomfort when insetting the Hickman line? As I have only experience of PICC Ines to date but know the transplant will use a central/Hickman line.
The one I got on Friday was done without sedation, it wasnât painful at all, local anaesthetic used.
I was aware of a bit of pushing & pulling but that was it.
Itâs a bit tender now but not bad.
Youâll be fine so try not to worry.
Keep us posted please.
Big hugs x x x
I never used to have a phobia about needles but while I was waiting for new Hickman Line going in I really began to get quite anxious. Every day the had to jab me to get bloods. Sometimes it was really painful, whereabouts they jabbed me and I think depended on who did it ??
They eventually put a mid line in my upper arm but that wasnât used to take blood. It was used if I needed blood or platelets. My arms, wrists & back of my hands are bruised. The Hickman Line certainly takes away all the hassle of needles.
Keeping everything crossed for you , youâll find a big difference once Hickman is insertedđ
Good to hear from you @TimE! And everythingâs crossed here that your kidney function is adequate for the transplant, and that your dates donât move around as poor @Fifimacâs did.
I second @Fifimacâs assessment of the Hickman line insertion. And yes, @Fifimac, it does settle down after maybe a week, and then the jangling of all the dangly plastic bits is the only annoying feature. You can tape them up when not in use. And such a lifesaver on the reduction of needles front. Needles never used to bother me, but at one point I got really sensitive to them, just because of the frequency.
Great to hear from you both. Am hoping the planets align for you both, on the Stem cell transplant front. Xx
We too have everything crossed that all will be well for transplant as I was all set for my transplant on 12/04 & it was cancelled a week before, due to my kidneys. Talk about living dynamic lives .
My new Hickman line served me well today , I had my first bloods taken from it this morning. No needles in sight
Good Luck on Thursday @TimE , hope everything goes well for you.
Keep us posted , I have another face to face with the Consultant in Glasgow next week, will be signing the consent forms I think.
My neck is easing today a bit , although I am
continuing with the paracetamols just to be sure.
Bathtime now so Iâm away to bag my lumins up in preparation
Have a nice evening folks x x
Aawww that is disappointing, you get psyched up physically & emotionally for the Transplant.
Iâd imagine they have a plan now going forward.
Donât despair too much , your team will be working away in the background to get you to where you need to be
Big Hugs to you and here anytime so please reach out , thinking about you x x
Iâm so sorry to hear this. Weâve got everything crossed for you that your kidney function improves soon, I can only imagine how uncertain things must feel for you at the moment. Please donât hesitate to give the support line call on 0808 2080 888 if you want to talk anything through. Tale care and remember this community is here for you.
Really sorry to hear this, @TimE - you must be so disappointed, frustrated and worried. I hope your consultants have given you an indication of how long it might take your kidneys to recover, and when theyâll next test your function - a time period to hope for, at least.
In the meantime, rest up and look after yourself, and please keep in touch if that helps.
Oh @TimE I cannot imagine how you are feeling. I expect it must be such an emotional rollercoaster for you, let alone there is the practical side.
My heart goes out to you.
Please use our forum to say how it really is for you, I find that it really helps me.
Really be kind to yourself and please keep posting.xx
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