That’s rotten news @TimE . I hope this all gets resolved for you as soon as possible. It’s anxious enough waiting for a stem cell transplant without added complications. I seem to remember that i failed all of the pre transplant tests but they ignored this and went ahead anyway…
Hi folks
Well, the day has now arrived after a few bumps on the road along the way.
I am being admitted today to QEUH , Glasgow.
My Transplant is scheduled for 12th July , nerves are kicking in now.
Thanks to everyone here for their support so far.
Love & best wishes to you all x x x
Wow, @Fifimac, gosh the day has now arrived, it is natural that the nerves (and all emotions) will be kicking in.
We are here for you always on here and want to know how you are getting on.
Also take the Blood Cancer UK support line details into hospital with you 0808 2080 888 in case you need them.
I will be thinking of you and take lots of care of yourself.
Hi @Fifimac
Glad to hear you are being admitted for your transplant.
Best wishes & my thoughts are with you take care.
xx
Wishing you all the very best @Fifimac, we all have everything crossed everything goes as well as it can, and as Erica said, we’re only at the end of the phone if you want to talk anything through.
Im just out the road in Hamilton so thinking of, and wishing you well locally and in spirit!
So pleased the transplant has finally come around for you, @Fifimac. Nerves are totally understandable though. Hope you’re settling into your accommodation and have everything you need. Please keep in touch if you need support. We’re all here for you, and we’ll be cheering you on from the sidelines.
Lots of love to you. X
Wow - that’s such great news! Be thinking of you. Please update us when you can
Good luck @Fifimac.
I had my transplant at QEUH in April 2022. You will be looked after very well.
Take it a day at a time and be prepared to be hooked up to drugs etc for long periods of time, that was a surprise to me!
Thinking of you x
Hi @Suey
Thank you for the wee bits of info. This is my 2nd day in the ward.
So far I have been hooked up for Potassium and today is my first dose of Chemo and also require blood. To be honest , I’m in the room so not exactly spoiling a shopping trip , lol.
The staff have all been nothing but helpful.
Glad to hear you are home and getting on ok , I hope you continue to go from strength to strength, my transplant will be 12th July.
I will try to keep everyone updated. Fingers x’d I can get through this relatively unscathed then out the other side.
Thanks again x x
Hi @TimE
Just doing a wee check in to see how you’re getting on ? I hope you’re medical team are keeping you updated in what their plan is going forward.
Sometimes you feel that things take forever to get moving.
It’s a bloody hellish road we are all on , thinking of you though. Take care x x
Hi @Fifimac
I’m OK thanks. I am having a scan of my kidneys on Friday and a follow appointment with the Renal consultant will follow, date to be confirmed.
My transplant will be back on if & when my kidneys function improve. This weeks blood test the egfr score was 56 which is really good for me normally down in the low 40’s just need this to hold here or above.
Hope all is going as well as can be expected with your treatment, take care.
My thoughts are with you
xx
Sorry I couldn’t wave back , lol.
I would have if I had a room with a view , lol.
Seriously though , thanks for your good wishes, my cousin & I used to go to The Cappocci Man in Hamilton , beautiful ice cream. ( many moons ago )
Take care
Continuing the discussion from Just Diagnosed with AML:
Hi so sorry to hear that you have been diagnosed with Acute Myeloid Leukaemia. I can see you have had many responses . I had Acute Myeloid Leukaemia July 2000, 2003, 2005 and 2007.I also had a bone marrow transplant in December 2007. At times it was easy sometimes it was tough but I am still here and you wouldn’t guess to look at me what I have been through. I guess what I am trying to say is you’ll have lots going on for the majority of the year but you can get back to a normal life. Being told you have cancer is devastating but stay strong, laugh and believe and trust in the haematology team and nurses and you’ll ok . If you ever need any advice I’ll be happy to help. Best wishes. Rose xx