Hello, I was diagnosed with T-cell LGL leukemia in Sep 2024 (47 year old female). The main symptom I have is fatigue - I have very low neutrophyl count, but have been fortunate to have had very few infections.
I have just started a deep throbbing pain in my thigh, which is bad enough to be painful to bear weight. Is this something others suffer from as well?
Of course, it may not be anything to do with the leukemia!! But I’m not aware of doing anything to injure it
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Hi @pam78 a great big welcome to our forum, I have Chronic lymphocytic leukaemia (CLL) but I certainly know that every ache/pain/lump/bump and I attribute it to my leukaemia.
But as you wisely say it may not be anything to do with your leukaemia so perhaps it is a trip to your GP as soon as possible and if it gets worse there is always 111 or A&E.
As a side issue yes, fatigue is my main symptom too.
Please do let us know how you get on and really look after and be kind to yourself.
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Hi @pam78,
Welcome to our forum and thank you for posting.
I just wanted to check in with you and see how your leg pain is? Whilst leg pain is not a common symptom of T-cell LGL Leukaemia , it can be a symptom of a blood clot especially as you only have the throbbing pain in one thigh. Whilst everyone is at risk for developing a blood clot, having cancer and some of its treatments can increase the risk. Its therefore important that you get this checked out if you have not done so already by contacting 111 or A&E. I have enclosed some information here from the NHS website NHS DVT information
Please let us know how you get on.
Take care
Fiona (support services nurse)
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Hello, thanks for your kind message. The leg pain has gone again - only lasted for a couple of days. I have had it a few times before, but never quite that bad, but it never seems to last for any length of time. Very much comes and goes. I haven’t investigated it any further - although I would have done if it hadn’t gone away like it has
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Thank you for letting us know @pam78. I am pleased the pain has gone away. Do let your haematology team know about it when you next see them especially if this has happened before. It sounds really unpleasant for you.
Take care
Fiona (support services nurse)
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