Good morning. I have recently been diagnosed with polycythemia vera and given the good news that my very severe aplastic anaemia is formally in remission; it had been managed well for the past 10 years but the relevant cells have only recently disappeared.
I am experiencing a number of symptoms including fatigue, rashes/ itchiness, migraines, Reynolds disease, night sweats, a red face, elevated blood pressure, and infections. I am also experiencing digestive issues including nausea and a sore stomach to name a few but suspect that is from the clopidogrel medication.
I have already started venesections so had anticipated some of the symptoms to abate. The only things to have improved is permanent fevers.
What I am wondering is if anyone, having started treatment for PV, experienced the same symptoms and how long it took for things to settle and the symptoms to depart. Or, did things like the fatigue and itchiness continue but just at a lower level?
I appreciate that all people are different but I would be interested in any shared experiences and what people did to overcome them/ treatment received.