I posted a few weeks ago that I was due to go on holiday and was fighting an ongoing chest infection Got away on holiday and had a fabulous time ( my GP supplied me with a rescue pack which was reassuring)
Took 6 weeks to feel remotely better from chest infection then I got the shingles just getting through that and now have developed a chesty cough and cold ! Have been suffering from fatigue for months Just seems to be one thing after the other Diagnosed with Chronic lymphocytic leukaemia (CLL) in June and am on watch and wait so guessing I will be seen in December but no appointment yet. Was thinking I should maybe ring hospital and chase up appointment sooner rather than later. What would people advise ?
I don’t think it would hurt to check to see when your app will be go for it
I seem to have posted this twice didn’t show up the first time !!
That is so funny @KayC ,I saw both ,thought you were wondering if anyone was there ,keep posting how you get on,hope you feel better soon
Haha. My biggest fault is my impatience and because I couldn’t see it straight away assumed I had messed it up and did it again
Yep @KayC I have replied to your other post too.
Wrote a post on here a few weeks ago I was struggling to get over a chest infection prior to my holiday. My GP gave me a rescue pack to take with me which was reassuring I managed without it and had a great holiday. Just paced myself as I do get really tired Took 6 weeks to get over infection then I went down with shingles. Just getting over them and now I have a cold and another chesty cough. Just seems to be one thing after the other. I was diagnosed with Chronic lymphocytic leukaemia (CLL) in June and am on watch and wait so guessing I will be reviewed in December no date yet. I’m thinking of ringing haematology to chase up appointment as getting another I’m just never well
Ive been following your posts but dont have you’re diagnosis,however I have had shingles and yes it is debilitating.Glad youre holiday went well but a bit of a bother for you having the returning cold and chesty cough. It sounds like your immune system is down and Im hot on this at the mo as Ive been told of a mixture from a well known health food shop which can boost the immune system.
As you say you are due an app in Dec and if youre feeling rough can you see your GP first who sounds lovely to have given you a rescue pack to go away with.Obviously if your bloods are playing up the mixture (not sure if we can name brands )wont be the answer.It does sound likeca plan to try and get a date for youbwatch and wait app.Im lucky in as much I always know when they are.
Hope my words are some help
Thanks that’s helpful. Good to hear from others x
Hi @KayC I think @Bannanacake has given you a great response.
As another fellow Chronic lymphocytic leukaemia (CLL)’er I find once I get one infection or condition it really depletes my batteries and I get further ones. My batteries get depleted far quicker that I can ever re charge them.
I was diagnosed in 2003 and in 2013 I contracted shingles, I think due to the stress of a house move, it returns every time I overdo it or get run down emotionally, physically or practically and it can emerge anywhere in my body.
Yes, I manage my fatigue every day and do most things in the morning or early afternoon.
It sounds as if you have a great GP perhaps you might list all your symptoms and their longevity and severity and ask for them to refer you for an appointment with your consultant.
My reviews are annually, others are different spaces. My bloods are 6 mthly with my GP.
Be kind to yourself and please let us know how you get on
don’t worry! I’ve merged the two topics
I would most definitely chase your appointment because it’s normal you want to see your doctor to be able to discuss your concerns so I don’t think it would hurt to chase. Maybe in the mean time you could speak to your support nurse if you have one & if not your GP. Please don’t feel bad about it being one thing after the other either it’s not your fault. Take good care
Can’t hurt to double check. What’s a Rescue Pack please?
I found that after I was diagnosed and began treatment that each year I got ill less often. The first year I was ill about eight times, all of which took at least three weeks to recover from therefore I felt under par for half of the year. The next year was a bit less and so on. I get poorly less often now but it still lasts far too long. My neutrophils have been low throughout due to the chemo but somehow despite that I am doing far better.
I would say that there is nothing more annoying than your husband having a 24 hour tummy bug and you having it for ages and ages!!! I do still love him lots though!
Thinking “ this will pass soon” became my motto.
So my GP gave me some antibiotics and steroids to take away with me in case I needed them
Rang haematology this morning and have an appointment for 13 th December
Brilliant news about your appointment @KayC.
Yes, my doctor gave me some antibiotics to take when I got an infection and a supply of urine sample containers (infections usually appeared late Friday afternoon or at the weekend was typical) until to tide me over until I could get an appointment.
Look after yourself.
So confirmed I have another chest infection had urgent bloods taken and extended course of antibiotics! Can’t remember the last time I felt well
I’m so sorry to hear about your recent chest infection. I totally understand your frustration with having multiple infections since your diagnosis. As others have said, make a list of your your symptoms and infections so you can share at your appointment on 13/12. Hopefully, after that appointment you’ll have a clear path as to the best way forward.
Please take care and get plenty of rest in the coming weeks.
Oh @KayC you must be so, so fed up with not feeling well for so long.
Be kind to yourself and if you would like to say how it really is for you our forum and the Blood Cancer UK support line are there for you.