I was told I have Monoclonal gammopathy of unknown significance (MGUS) in June after feeling very unwell for a number of months and having blood tests. I was off work for just under 3 months and have just completed a phased return.
I have been advised that it is unlikely that my symptoms were caused by having Monoclonal gammopathy of unknown significance (MGUS) although I have since read that there is a small number of the population who can experience some symptoms.
That said I am coming up to 65, still working full time in a very demanding job. So the symptoms could be for a variety of reasons.
I have been reading comments on this forum for some time and found it helpful.
I recall reading a comment about worrying whether a new ache or other symptom is related and that it is difficult not to worry.
At the same time as the diagnosis I had pain on my left side mostly, weakness in my legs and fatigue. I also had a rash on my left leg. I was referred to a neurologist to rule out MS as they symptoms were similar. I had nerve pain for many weeks. I still have weakness in my left leg affecting my mobility and that may well be arthritis but I have developed a different type of rash and itchy skin. The GP is not too concerned and prescribed antihistamine and a cream.
I am walking more and doing exercise, although my balance isn’t great. Thankfully, most of the nerve pain has now subsided. It would be good to hear whether anyone has a similar experience.
Hi @GillyOne.
I’m really glad you posted as I know there will be others with the same diagnosis who will be able to share their experiences.
I have a different blood cancer but completely relate to that worry about every ache and pain and if it means the lymphoma is active or has progressed. I don’t think that fear ever goes away. I probably drive my doctor crazy, but for peace of mind I always check out anything that I’m concerned about.
It sounds like you have a really busy job and you’re right, work stress can cause a whole load of symptoms.
I just think that you know your body the best and if you’re worried, get it checked.
I look forward to learning more about you and hope you find value in the forum
Hi Nichola, Thank you for your response. It was really helpful. Peace of mind is very important even though there is always something nagging in the back of your mind. I am trying to be easy on myself these days. I have been enjoying the beautiful autumn sunshine and the going for early evening walks as the sunsets in the local park and loving the scenery. That all helps to take the mind off of things. Thank you again. Gill
Hi @GillyOne a great big welcome to our forum and posting.
Yes, aren’t we complex beings and it is so hard knowing what symptoms are related to what or something completely different @Nichola75 has given you a great response and peace of mind is so important.
I am a also a great walker and I really benefit from fresh air. It is a marvellous occupation for me as I am very nosey.
However I am an early morning walker and yes, aren’t the autumn shades absolutely glorious in the sunshine. It really clears my mind too.
I hope others will share their experiences.
Be easy on and be very kind to yourself and please do keep posting
