Hi all, I have had Myeloma for seven years. had Tclistamab injections in December. After five, in CR but wiped out IgG immune system. now on IVIG transfusions. Anyone else had the same treatment
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Hi @Lucretia a great big welcome to our forum and I hope someone will be able to help you.
I have found often although we have different diagnosis we share similar fears ,thoughts, feelings and practicalities.
Please do keep posting as I Iook forward to hearing more about you.
Look after yourself
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Hi Erica thank you so much for your message: I find the weather more depressing than the infections. I have been at home for a week with a bug I got last weekend when I read my gas meter. three people were away sick and I must have touched something! when I feel stronger, I will wear gloves! How are you? I would love to hear from you again 
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Hi @Lucretia and a veg welcome to the forum. As @Erica said, you are never alone now you have your forum family 
I’m hoping others will be able to share their experiences with you from a diagnosis and treatment point of view but we are all here to support you through all those emotions that come with this journey.
Great to meet you!
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Dear Nichola how kind of you to write thank you
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hi all: blood test ok! immune system normal! wash my hands constantly…went to shop yesterday but not going again as too many coughing children! wish I could travel to somewhere , but Im on BUPA and I need to win the lottery! Huge love to you all and Happy Christmas
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Good news about your tests @Lucretia, thanks so much for letting us know.
I reckon a celebration is in order.
Yes, a very happy Christmas and healthy new year to you too, please do keep posting xxx
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That’s very good news. Have a very happy Christmas x
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thank you Nichola and Erica for your lovely replies. the myeloma has returned three times but all ok as Im here! had seven fractures misdiagnosed 7 years ago! was in agony for 6 months, lost 5 inches in height and compression on waist and bulging tummy! lovely stuff! so I am not the sweetest patient! But the agony of those bones was so bad that nothing since has bothered me so much although Im scared of needles! I ask questions and annoy doctors perhaps! but I find that asking questions and going to A&E very helpful: sepsis was very frightening and I am now a complete hypochrondriac!! Happy Christmas to you all 
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Oh @Lucretia reading your post I thought I had written it.
I was diagnosed with leukaemia 21 yrs ago. Then 12 yrs ago I also had about 7 vertebral fractures which compressed which I was told were ‘just muscular’ and lost 5 inches in height. I was 5 ft 5in now I am lucky to make 5ft. Yes, the pain was immense. and my boobs now meet my waist and yes, the bulge!!
I was on crutches at the time of the 2012 London Olympics.
We had builders in and they actually brought me wine and chocolates when they left.
I can laugh now.
Yes, I am a complex being medically and laugh the only department I am not under at my hospital is maternity.
I have learnt to be pleasantly assertive and ask questions too, I am also learning to say ‘no’ at 74 yrs old
Please do keep posting , Be very kind to yourself xx
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I love anybody who asks questions and annoys doctors. It’s so important!
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dearest Erica so loved your post x i have seen a myriad of haemotologists, the coldest men! i kissed the first one on the cheek on my first remission! he rubbed my kiss from his cheek and glared! i loathed him from that moment on! the last one, stiffened when I hugged him and thanked him! such conceited unattractive men! so the last one I hugged I said, I dont fancy you at all: this is just my way of thanking you!
when my tummy swelled up before my six month wait for a diagnosis the male doctors said this is normal for your age! I refuted it cos I never had a tummy in my life! I love men but ye gods the male doctors are sexless! only one was gd looking and he knew it !
My thoughts are with all those who are frightened, in pain and anxious : do tell us your stories too if it helps soothe the worry
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Oh @Lucretia I am sorry to hear your experiences, but I have been very fortunate in my experiences, although I have to say I have not tried to kiss any medical people.
I am just so grateful for our NHS, my personal treatment has been first class.
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dear erica so pleased that yr treatment is so good: i just love to laugh at all the oddities in this world even when living with myeloma, huge love
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