Non-H Follicular Lymphoma

Hi everyone. I have developed a flattish quite round the size of a 1 pence and muscelly lump just halfway between my earlobe n chin. I have it a few months now should i b concerned. Suppose i need to mention it to my haematologist which i should see in 2 weeks time.

1 Like

Hi @Ruth2 I think you answered your own question in your last line.
I think any symptoms we get that we are concerned about we should get checked out by our haematologist or GP, although I get obsessed that any symptom I get is connected to my blood cancer !!!
Please let us know how you get on and look after yourself

3 Likes

I would definitely mention this to your consultant. I’m glad you don’t have to long to wait. I have follicular lymphoma and at every appointment I mention something new that I’m worried about. However, it’s better than things playing on you mind. Please let us know how you get on :blush:

2 Likes

Thku Nicola and Erica. Yes my appointment is shortly so i will mention it even though it is not giving me any bother. I just feel it when i am applying face moisturiser. Maybe with Follicular lymphoma we should expect such swellings of the lymph i dont know. But i will check it out. Thku.

2 Likes

Hi @Ruth2 hope you’re doing okay. Our @BloodCancerUK_Nurses might also have some further general info so I’ve tagged them in. Good to hear you’re bringing this up with your haematologist when you see them - don’t be afraid to get in touch with your clinical team in between appointments too if ever you have concerns.

2 Likes

Thku Alice. Yes im doing ok. Not loosing weight n not having night sweats. So indicators seem good.

3 Likes

Oh definitely mention to your team. I must admit that I get really paranoid about everything out of the ordinary and almost feel guilty of I mention things to doctors, like I’m taking up their valuable time but better to get things checked than not.

3 Likes

Dear @Ruth2, thank you for posting.
I would mention this to your Haematologist when you next speak to them in 2 weeks. Of course it is normal to worry about such lumps but please be reassured it could be an inflammatory response. I would advise you to note the size and timings that you have noticed this lump. I would also mention whether the size has increased.
If you do need to dicuss this please do give us a call: How to contact Blood Cancer UK | Blood Cancer UK
Kind regards
Gemma

2 Likes

I was in for my review today n mentioned the lump to my haematologist. He felt it n examined around my jaw n neck area. He said it is most likely b my low grade follicular lymphoma. N didnt think the benefits would outweigh the risks of exposing me to radio/chemo at this time as i was generally feeling well. I have other enlarged lymph nodes in my body so suppose focusing on a specific area isnt the way to go. Anyway i feel it ok to watch n wait for another 4 months when i will b seen again.

2 Likes

I am glad @Ruth2 that you are being monitored in 4 mths time but perhaps if your symptoms change you could always contact your haematologist or nurse contact in between for peace of mind.
Please keep posting and look after yourself.

3 Likes

Thanks for taking the time to update us. Im glad you mentioned it. Your consultant seems very good and it’s so important to have trust in them. As @Erica said, you can always contact them earlier if you need to. Hope you relaxed tonight. Appointments really take it out of me x

3 Likes

Hi @Ruth2 I have been thinking of you and I just wondered how you are thinking and doing?
Take care of yourself

1 Like

Erica that is nice u r thinking of me thku. Really i remain the same the lump above my jawline on the inside is still there n about the same size. I was just thinking if they were to remove it n do a biopsy what would b the results. Could i cope with the uncertainity n finding out what exactly it is. Ignorance is bliss maybe sometimes. Ok im told its more than likely lowgrade lymphoma but does that mean it is now turned into a tumour. R clump of cells together. Maybe that constitutes a tumour. Just dont know. Hope u r well Erica.

1 Like

It’s so hard isn’t it and brings up so many questions, thoughts and feelings! X

1 Like

Yes indeed Nichola you r right. Im just going to enjoy the summer first anyway. Hope you r keeping well too.

2 Likes

Hello there @Ruth2, I am so sorry that still have uncertainty about your Lymphoma. When you saw the Haematology team were you given a plan or to continue on watch and wait? Do you have a Clinical Nurse Specialist you can call to talk these concerns through with? You are most welcome to call our Support Line to talk through your concerns: How to contact Blood Cancer UK | Blood Cancer UK
Take care
Gemma

1 Like

Gemma thku for your reply. I was to continue with watch n wait n if i had any problems with it then phone the haematology unit. I may phone u if that ok at some stage for more clarification but at the minute i am just really watching n waiting n getting on with life.

2 Likes