Polycythemia and Hypoglycaemia

Hi,

I’ve been told that I may have Polycythemia (not sure if it’s Polycythemia Vera or the non-cancerous versions).

My haematcrit has been slightly high for over a year but has repeatedly been shrugged off by my GP as being dehydrated at the time of the blood tests (I didn’t know this until I gained access to the NHS app and could view my medical records). This is despite the fact I spoke to my GP about excessively drinking water: I usually drink around 5-6 litres per day but I don’t know why. My haemoglobin is high-normal but has been high twice in the past year.

Anyway back to the point of this post - early last year I started to suffer from repeated episodes of hypoglycaemia but tests showed I’m not diabetic. I’m currently under the care of an Endocrinologist to investigate why: he thought it could be insulinoma but an MRI came back clear.

Does anyone with Polycythemia have problems with Hypoglycaemia? Just curious that there may be a cause and effect going on.

Thanks again.

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Hi @PeasNGravy welcome to our forum although I hope that you do not need us.
I hope others might be able to share their experiences.
I think it must be a very difficult time for you while you are waiting for a definite diagnosis and the way forward.
Please do keep posting how it really is for you, I find it helps me.
Now is a good time to write down your fears, questions and practicalities for your next appointment, again it helps me as I have a habit of walking in a medical room and my mind goes blank.
Be ever so kind and really look after yourself and please do keep posting as I look forward to hearing more about you.

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