Should I be concerned?

Hi, I’m a 20 year old girl and am a bit concerned about the symptoms I’ve been having.

I spiked a fever a week or two ago that went up to 38.5 at its highest and never went under 37.5 at other times. It’s gone down now thankfully but I’m still either feeling boiling hot or freezing cold - no in between.

Over the past few weeks I’ve lost almost 10lbs, which is a lot for me because I struggle to lose weight at all. I haven’t been exercising at all and haven’t been dieting.

I’ve had a swollen lymph node on my neck that’s been there for about two weeks and hasn’t changed size, and one on my groin which has been there about three weeks and I think has gotten a little bigger.

I am no stranger to joint pain because I’m severely hypermobile, however I’ve been getting pain that I can only describe as being deep in my bones. It switches out between my legs, ankles, hips, arms, wrists, fingers, ribs, shoulders, jaw, back and neck. Something is always hurting.

I’ve had head congestion that never goes away, as well as frequent headaches.

I feel weak and breathless all the time. I’m breaking a sweat at the lightest of exercise, even walking up and down the stairs doing laundry.

My ribs feel bruised, my chest feels like there’s a weight on it. I’m getting sharp pains under my left ribs, and sometimes my right, and for the past few nights I’ve had a strange warm feeling down the side of my left ribs when trying to sleep.

I’m absolutely exhausted all the time. I’m either sleeping 12+ hours a day, or I’m struggling to fall asleep/stay asleep/wake up from sleep. I never feel refreshed and can’t focus on anything.

I had my period last week and it was very unusual (sorry if this is TMI). My periods are always heavy but normal consistency, this time it was a short period and relatively heavy but my blood was super thick, it basically came out in all clots.

I also have what’s called migraine with brainstem aura, where I get episodes of tongue tingling, facial numbness, vertigo, nausea, weakness, internal tremors etc. Yesterday I had my first episode since last September, and during the night last night I had another episode, this time making my legs mostly numb for an hour, which doesn’t normally happen. I was also struggling for breath so badly last night I nearly went to get my mum to take me to the hospital. I’ve had the internal tremors throughout today too.

I went to see the GP on Monday for my symptoms. I saw a paramedic because my case was classified as acute illness. He checked my chest and said I mostly look okay, except my chest sounds a little rattle. He said it’s probably a chest infection, and put me on antibiotics. It’s day 5 of antibiotics today but I don’t feel any better. The chest pains have spread to my sternum, I feel absolutely exhausted all the time and my bones really hurt. We went back to see him and he said my chest actually sounds a lot better, and everting else looks okay. I asked for a blood test because I get ill so often that I’m sure I have to be iron deficient, but he said no. He said it’s a Friday, they don’t have the people to do it, and he also doesn’t know what he’d be looking for in a blood test. He said there’s nothing they can do for me, and if I struggle badly for breath again the only thing to do is go to A&E.

I came out of the doctors crying. My symptoms come and go but there is always something there. Maybe it’s all my conditions flaring up at once and it’ll probably resolve itself in a week or so, but I’ve heard stories about people not catching things like leukaemia in time due to the generic symptoms and their lives being taken due to it.

Am I being dramatic? I feel like I’m not being taken seriously at all. My mum said I’m likely not helping myself by resting so much throughout the day, and says I should get up more to do things and get my body back in a routine, but I’m just so exhausted. I know chances are it’s nothing but I’d hate for something big to be missed if that is the case.

Should I go down the A&E route next? Should I wait it out and see if it gets worse?

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Welcome to the forum @asaun05

I understand you’re feeling very worried and frustrated, especially after your recent visit to the GP. It’s completely valid to be concerned when you’re experiencing so many persistent and unusual symptoms, and it sounds like you’re having a really difficult time.

Given the range and severity of your symptoms, and the fact that you’re not seeing improvement with antibiotics, it could be worth seeking further medical attention.

You are not being dramatic. It is very important to trust your instincts about your own body. Many conditions can present with vague or generalised symptoms, and it’s essential to get a proper diagnosis.

You are right to explore all avenues of support, and contacting one of the blood cancer UK nurses could be incredibly helpful for getting information and guidance.

You can contact the Blood Cancer UK Support Line to speak to one of their Support Service Nurses in confidence.
Here are their details:
0808 2080888

They can help you understand what might be happening and what questions to ask your doctors. They can also offer emotional support and signpost you to other sources of help.

Thinking of you. Do let us know how you are getting on.

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Thank you so much for your reply. I don’t want to be seen as a hypochondriac or anything to family or doctors because blood oxygen, heart rate and chest is all okay. It could easily be explained away to my other conditions flaring up as I have quite a lot of them, but hearing some stories about blood cancer diagnosis, it’s put the thought in my mind about my new symptoms.

Would you suggest I go to A&E if I have another bad bout of deep chest pain and breathlessness? I know you can’t medically advise but I’m thinking it might be my better option than going through GP again if it’s going to settle my mind about it. I know they’ll do blood tests there as well, and help with my symptoms more than the GP are.

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I’m really sorry to hear how worried you are right now – it sounds incredibly tough.

You might find it helpful to call 111. They are set up to provide medical advice and can help guide you to the right place for support.

You can also visit their website at https://111.nhs.uk/ for guidance.

Please consider reaching out to them. They’re there to help, and it’s a good next step for you.

Do take care

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Hi, just updating as requested. I’ve been having some new oral symptoms, mainly swelling of my gums, tooth sensitivity, mouth sores, a general weird taste in my mouth and also tasting a bit of blood when I cough/sneeze which isn’t pleasant. I’m on my last day of antibiotics and am considering maybe these are a result of that, so I’m going to wait it out a couple of days until the antibiotics are out of my system and if symptoms persist I’ll book in with the private GP next week, and keep A&E as an option in case I suddenly get worse. It’s tricky because a lot of my symptoms come and go a lot so its hard to know which are relevant and concerning, but at minimum at least I might be able to get a general blood test and take supplements if I’m iron deficient, which I’m suspecting anyway. Thank you for your support

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Hi @asaun05
I can see @Jules has given you good advice.
It’s always hard when we have a lot of symptoms as it can be a number of things.
What’s important is that you know your body best. If you feel like things are not improving I would definitely go back to your GP. Sometimes we have to be persistent which can be hard when we are feeling unwell.
Please keep us updated on how you get on.

Nichola

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Hi there
I would be factual in what you would like and confident
Simply you think you have blood cancer and you would like a blood test to rule it out.
Don’t deviate from that
Take a friend for support with you
Write down what you want if that will help you stay focused on what you would like

You can use the nhs constitution

4. The patient will be at the heart of everything the NHS does

It should support individuals to promote and manage their own health. NHS services must reflect, and should be coordinated around and tailored to, the needs and preferences of patients, their families and their carers. As part of this, the NHS will ensure that in line with the Armed Forces Covenant, those in the armed forces, reservists, their families and veterans are not disadvantaged in accessing health services in the area they reside. Patients, with their families and carers, where appropriate, will be involved in and consulted on all decisions about their care and treatment. The NHS will actively encourage feedback from the public, patients and staff, welcome it and use it to improve its services.

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Just had a blood test taken by GP. Fingers crossed it’s iron or thyroid or something and not anything bad :crossed_fingers:

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I glad that are listening to your concerns. Please keep us updated on how you get on :blush:

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