Hiya
I start back in my trial next wed it’s 4 cycles
I will be on Lenalidomide, Bortezomib, Isatuximab and Dexamethasone, then from cycle 5 I’m on Lenalidomide and Isatuximab.
Consultant said there shouldn’t be any side effects, so it’s every wed back to hospital for me.
How’s hubby doing and does he have a date for his bone biopsy?
Take care
Paula xx
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Hi @Paula1 ,
Hubby has decided he wants to remain on the myeloma trial too. He is keen to do his bit and help research.
He has had his bone marrow biopsy but we don’t get the results for a week or so.His consultant has told us he will start his 4 cycles tho next week. He will be on the same meds as you have mentioned. Did you take isatuximab before , I can’t remember when you listed what you were taking., when you did induction treatment. Hubby has always been on it. That means he will be having his next treatment the same week as you.He is still trying to put his weight back on, but his energy levels are slowly increasing. He hasn’t got his full appetite back yet. We didn’t realise he would have to do so much more chemo, which he tolerates ok, but it ties you to the hospital. I was hoping once his energy returned we could have trips out and some overnight stays. Just to cheer him up, mental health is so important. How you feeling in general, are you still doing ok with fitness? Will you be finish8ng treatment then after cycle 5 ? You have done so well,Paula, I’m sure it will be business as usual for you with the treatment.
Take care, keep us updated please, sending you a big hug.xx
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Hi Olivia
Had a long day at hospital yesterday 9-6.30
Had a bad reaction to the isatuximab made me sick, haven’t had this one before but the nurses were good and controlled things for me. Much better today just a fuzzy head.
Has hubby been for his treatment yet this week?
Take care xx
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@Paula1 ,
Sorry to hear you were sick, I’m surprised as you tolerated all the drugs well during your induction treatment. It’s a different drug I suppose for you.Hope you feeling better now. How did you do with your last bone marrow biopsy, hope it went well and you achieved remission… Hope all your numbers are doing well
too.
Hubby was due to start consolidation treatment but his neutrophils dropped so he has had more bloods done. If the next lot improve he will start treatment.
He did have isatuximab previously and was ok, so we are hoping he will be the same again. Obviously having had a transplant it’s like resetting to zero, so the body could react different this time.
I’m sure you will get used to the drugs or they may reduce the dose or change them for you. Make sure you look after yourself. Keep us updated and get in touch anytime.xx
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@Raffles1 Just checking in to say hi. Haven’t heard from you for a while and wondered what stage you were at? How have you been doing?
@Paula1 , hope you feeling ok after the isatuximab. Hubby’s bloods back up ( neutrophils) so he started consolidation treatment last Friday for 4 cycles. I’m hoping he responds as before.
Hello also to @2DB , @Erica , and all you lovely folk on this forum.
Keep the faith, look after yourselves, take care.xx🥰
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Hi Olivia
I’m feeling much better now thank you, it was like drug overload and zometa all at once.
Hope hubby does fine on these cycles
Hello to everybody on here
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Good luck on your journey @Raffles1. I’m just started chemo for Myelodysplastic syndrome (MDS) and I’m very anxious so I keep asking about the transplant part but all the doctors tell me to concentrate on the treatment now but I can’t stop thinking about the month I’ll be in isolation for the transplant. I’m sooo glad you have now a good team of doctors
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