Hi. I have Myeloid Sarcoma which is a rare form of Acute Myeloid Leukaemia. My sarcoma is being treated the same way as Acute Myeloid Leukaemia. I had a weeks very intensive chemo treatment in hospital, followed by three weeks of recovery.
Since then I have been told I need a stem cell transplant, as my cancer cells have mutated. The stem cell consultant explained all the process, the possible side effects, and long-term effects. He also mentioned my long-term quality of life could be affected. He also told me that without the stem cell treatment my chances of a long-term remission with chemo alone would be 20%. With the stem cells this would rise to 40%.
Problem is I’ve just received the Stem Cell Specialists letter explaining all this. Seeing it in black and white and being able to re-read the letter, I’m now having doubts whether to go through it all.
i don’t have anybody dependent on me. My wife died 2 years ago (of cancer) and we had no children.
Up to the point of getting the symptoms of the sarcoma (jan 2022) I was a very fit 53 year old man – I was a competitive cyclist and since the first lock-down I discovered the joys of hiking, culminating in doing the York 3 Peaks in 10 hours and a 2 day expedition walk of 50 miles in total.
I’m now of the opinion that quality of life is better than a long life.
I’ve had a good life, so is stem cell transplant worth the ill-effects if I only have a 40% chance of long-term survival and I could end up with some bad quality of life issues? I’m wondering whether to not bother, carry on with the chemo treatment to shrink the Sarcoma as small as possible, recover and feel better and have a few good years of living life.
I’m so confused right now.