Continuing the discussion from I've been thinking about you, how are you doing?:
For my WM I have just completed a programme of 6 treatments of DRC at 3 weekly intervals plus 6 injections to boost my autoimmune system.
4 months ago I found it impossible to do the majority of every day tasks, and I could not walk more than 50 metres.
Now I can do everything and have done a walk of 3 miles.
I now only hope that the success of the treatment is long lasting.
My sincere thanks go to my haematologist consultant and the wonderful nurses in the day clinic.
Hi @Broyter, it’s wonderful to hear how far you’ve come, it sounds like you’ve been through an awful lot. Good to hear you had such a brilliant treating team.
We have everything crossed that the treatment success is long lasting and that you go from strength to strength!
Hi @Broyter I am so glad that you have posted, it sounds as if you are doing well and have a wonderful treatment team.
I am also a great walker, I think it is good fresh air exercise and very good if you are as nosey as I am.
I look forward to hearing more about you.
Look after yourself
Good on ya’. I’m in a Clinical Trial DRC against Rituximab/Ibrutinib. I’m in the RI arm. Finished Rituximab last November and now it’s Ibrutinib everyday. Having had chemo/radiotherapy for Hodgkins in '84 and now on targetted treatment for WM what a difference.
It felt strange when my CSN used the word remittance within weeks of my last Rituximab. It was the ‘5 year rule’ in '84 before daring to say the R word.
Enjoy those walks, get the air and listen to the birds.
Best wishes for the future.
Goofed for you. I hope I enjoy the same experience.
It’s so lovely to hear how well you are feeling and that you are back to doing the things you love!
I too have had DRC treatment for WM which finished after 6 rounds Oct 2022. Now have blood tests every 3 months and all going well. Taking every day as it comes but feel so much better than this time last year. Positive thoughts all the way!
Oh @Lot how lovely to hear from you with your update.
I am so glad that you feel so much better than you did this time last year…
Yes, taking every day as it comes sounds a very good idea to me too.
Sending loads of positive thoughts to you too and really look after yourself and keep posting.
Great to hear you are feeling so well
Lovely to hear some positive news and that you are doing well after your treatment. Like you say each day as it comes , it’s definitely small steps rather than big strides but you will get there. All the very best for a continued improvement. Do stay in touch.