Hey there @lukey55, welcome to the forum. I’m glad you found it here as your worry comes across clearly and this is just the right place to bring concerns about blood cancers. I’m really sorry to read of those strange symptoms you described and hope they’re tolerable.
Although I recognise some of what you’ve shared from being diagnosed with blood cancer last year, I’d say our test results are specific to us and always best talked over with specialists. Feedback on potential diagnoses can’t be offered here as forum members are like you with concerns about blood disorders, rather than being medically trained.
But the Blood Cancer UK specialist nurses are lovely and can be reached by phone to talk over next steps and help explain test results on 0808 2080 888.
Personally I’d ask the doctor who took the tests and knows of your night sweats and lost weight to refer you to a haematologist to have those symptoms checked out. In the meantime, try to avoid searching your symptoms online as there’s a lot of outdated information out there and it’s too easy to find inaccurate prognoses according to Dr Google.
Please let us know how it goes getting referred and what further tests by a haematologist tell you about those symptoms then we can figure out how best to support you @lukey55.
Hi @lukey55 thanks for posting on our forum.
Yes, your GP is best placed to talk to colleagues about the next step in diagnosing your symptoms and will probably take other factors into account as well.
I hope you get a diagnosis soon, please do let us know how you get on.
Look after yourself
Oh @lukey55 this is great news, you’re most welcome. Be proud of your effort—you acted swiftly to advocate for yourself which is sometimes hard to do with all this worry swilling around.
Do please let us know how the referral goes and what comes up when you’re under the care of a haematologist. You’ve got the ball rolling now so it might take some patience to tolerate the waits in between appointments and test results.
If I may be so bold, now is the time to find healthy distractions and keep yourself occupied so the worry doesn’t take over. Personally I find hiking and watching films can sort of pacify my anxiety. If meditation is your sort of thing that can help too.
For now it’ll be a big old waiting game so please be kind to yourself. If you have loved ones to share this with then I’d say a problem shared is a problem halved. It’s also good to have a trusted companion with you at appointments to help keep notes.
But do let us know how it goes @lukey55! Really glad you posted on the forum.
Oh you’re already doing such good stuff for yourself by getting outdoors, so excellent. Don’t know what I’d have done without hiking last year after my diagnosis with Polycythaemia vera (PV). Let’s keep our fingers crossed you get some great results from further testing.
As for your age, I can imagine how scary it feels thinking ahead. I was told I’m a “young survivor” but feel like I’ve aged very quickly with worry! Not recommended! But being younger means we have more time ahead for science to help with whatever illnesses we might have, and youthful resilience is in your favour.
Don’t forget the Blood Cancer UK nurses are right there at the end of a phone should you need to chat to a specialist, and the forum is here for any updates you might like to share.
Oh @lukey55 walking on the Derbyshire Dales sounds idyllic, I am also a walker and have wonderful walks round Royal parks and towpaths, every day is different and walking is a brilliant occupation if you are nosey like me, clears the head and sets me up for the day.