Hi, I was diagnosed with Acute myeloid leukaemia (AML) at the end of November. The biggest shock of my life.
I spent 9 weeks in hospital and at times I thought I wouldn’t make it. I was so ill and I had so many things wrong with me eg. Rashes, swelling, pneumonia, a chest infection, a huge ulcer on my tongue, vasculitis to name but a few!
I have just finished my second Chemo cycle…
Is anyone else on the Victor Trial Chemo?
I was wondering how you feel whilst on it.
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Hi @Jan08 Sorry to hear of your diagnosis and the rough time you’ve had, I hope the second cycle was a little easier.
Could I ask what chemotherapy you are receiving on the Victor trial as I know its a randomised trial between venetoclax and low dose cytarabine or intensive chemotherapy (although I’m sure the VEN-LDAC feels just as intense!). It may be there are other people on the forum who have experience of the individual drugs, outside of the Victor trial that can share their stories. - Jane
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Hi @Jan08 welcome to our forum and I certainly cannot better the @ClinicalTrialsSupportService response.
You certainly have had a rotten time with side effects.
I always make sure that I keep my medical team informed of my side effects, the severity and impact on my life especially if I were on a trial.
Please do let us know how you get on and be kind and look after yourself.
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Hi Jane,
It is the VENETOCLAX Chemo I’m on.
10 consecutive days of the injections and every day of the tablets. As well as blood thinning injections twice a day.
Apart from the nausea, vomiting at times and tiredness, I haven’t had anymore side effects.
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Thank you Erica .
Do you think I should inform them about the vomiting?
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Hi @Jan08 I am a non medical person’s responder here, but I would say if you are vomiting perhaps yes, it would be best to to tell your medical team as it might alter how you react to your treatment regime.
I find vomiting really takes all goodness, energy and wipes me out.
Be kind to yourself.
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Thank you for your advice Erica.
I will get in touch with them.
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Hi @Jan08. As @erica has said, it’s always best to inform your medical team. Please keep us updated on how you are doing. It sounds like it’s been a tough journey!
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Hi Nichola,
I will. I’ll be going to hospital tomorrow for a blood test and a dressing change and I will tell them.
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They may be able to give you anti sickness tablets which may help.
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Morning @Jan08,
I can see you’ve had some great advice from everyone.
It is always important to let your team know of any side effects particularly when you’re on a clinical trial, but also because the team may be able to give you something to help. You may be on anti-sickness tablets already, but if they aren’t working properly it may be you need to switch to a different one.
I hope all goes well at the hospital today - Jane
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Thank you for your advice. I’m at the hospital now and I have mentioned it and they are going to change the anti sickness tablets. Hopefully they will be ok 
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