Hi @Paul,
Thank you for sharing this. I hope you are doing okay today?
Being aware of your prognosis and as you say having to potentially face your own mortality must impact on so many areas of you & your families life that likely most would not appreciate or understand.
It is good that you feel supported within your own team. Please do also bear in mind, that our own support service team are very much here should you wish to have a chat about anything at all- 0808 2080 888.
We are always here for you too Paul.
I was diagnosed late July with Lymphoma, I have to wait until I go back next week to discuss chemo and find out more about which Lymphoma I have, what stage etc. I am in limbo, as we know nothing. I canât talk about it to my husband as he keeps saying, lets not worry and wait until we see what they say, like it is all going to go away or something.
He is the most supportive husband anyone could wish for, but with this he will not talk about it. I am sure he is in denial. I donât know how I should feel emotionally even though I just want a good cry.
We have a 6 year old, and because of the exhaustion I am finding it hard to keep up with him, even though my husband takes over when he comes home from work and wonât let me do a thing on the weekends. I am lucky he is so good in that he is not demanding, but it is still a struggle to look after him, especially during the holidays.
Oh @Azzariah you must be in shock and that is natural. Welcome to our forum and I find this is a place I can say how it really is for me and people with understand.
You show so well how people deal with situations differently, my husband is a head in the sand kind of guy and always has been.
His way of showing affection is to make me a hot chocolate, which I have to say he does rather well. Perhaps your husband is doing the best he can.
There is no right or wrong way of feeling and a good cry is fine by me.
You say that you have an appointment next week to find out more information.
If you have any fears, questions, symptoms and practicalities perhaps now is a good time to write them down to ask next week.
The Blood Cancer UK support line is there for you on 0808 2080 888if you need to talk to them.
I look forward to hearing more about you and please do let us know how you get on next week.
Be very kind to yourselves and spoil yourselves
Thank you Erica. I think I will phone to speak to someone. I was told I have B-Cell Non-Hodgin Lymphoma and although they think it is Low grade they need another biopsy to make sure. If it is low grade I will not be getting chemo as told, but will be put on âWatch and Waitâ.
I was also told that the itchy skin and night sweats are nothing to do with the cancer, yet all the info I could find states they are symptoms. Now my emotions are all over the place and the anxiety has kicked in. Yesterday I was so emotional and the anxiety made me feel so sick. I am making an effort to get out of the house with my little boy today to try and change my mood as we actually have some sun today.
Hi @Azzariah thatâs a good idea of yours to ring someone.
I wonder do you think your GP might be able to help with your anxiety?
I had talking therapy which really helped me.
I also think it is a brilliant idea of yours to get out of the house with your little boy, as you say it is wonderful to get some fresh air and sunshine and have some fun together.
I think I will go and get some fresh air and sunshine too.
Please do let us know how you get on and spoil yourselves.