H this is my first time on here please bear with me 
i was Diagnosed with Chronic lymphocytic leukaemia (CLL) 2 years ago and i have been on watch and wait since then ive been told on my last hospital consultation that im binet stage B now and have to start treatment which will be oral ibrutinb and venetoclax
Im really confused as my bloods are okay apart from my white cells but was told have leveled since my last visit i have enlarged lymph nodes on neck under arms and groin ct scan has said apart from this every thing else is okay im quite active exercise regularly and am on a healty eating plan im worried about every thimy consultant said i could start treatment asap or after xmas i would prefer after xmas but i dont know what to do im worried about side effects of these drugs as i hardly take a tablet for headaches i dont drink or smoke either but im trying to come to terms with worrying about work and finances im very scared and its affecting my mental health worring about what i should do 
Hi @jw6465
Welcome , I am so sorry you are going through such a lot at the moment. I have Chronic lymphocytic leukaemia (CLL) and can understand your concerns and worries
I am not yet having treatment but due to my current symptoms it’s probably close so these questions are really familiar to me . I see my consultant next Friday.
Do you have a specialist nurse you can speak to about your treatment? It sounds like starting after Christmas would be helpful as it will give you time to ask these questions
I find writing them down and taking the list with me helps me get some clarity… difficult when you are in the moment I know !
As for work you are probably already aware that as a disability having cancer gives you the right for reasonable adjustments etc and I think treatment comes under that but am sure someone on here will be far more knowledgeable than me and have better information and advice.
Please be very kind to yourself and take care
Thank you so much for taking the time to answer i have a hematology nurse i can talk to she is helpful but recommended i come on here to talk to people going through the same thing it would be helpful if any one who has started oral treatment could tell me how they have managed with side effects i know everyone reacts differently but it would be an advantage to know if beneficial and could i lead a fairly normal life
Thank you i will take some questions and write notes on my next appiintment 
Hi @jw6465
Welcome to our forum - I’m so glad you have found us and hopefully someone who has been through something similar will get in touch soon. It’s understandable you want to connect with others and get some reassurance at such a worrying time for you.
I wanted to pop our information about work and finances on here - it may not be something you want to read right now, but when you are ready, you can absorb some of this information and hopefully it will give you some reassurance and understanding about your rights: Blood cancer: money and work | Blood Cancer UK We’re here if you ever have any questions on this.
It’s so important you get a good understanding of your treatment, so as already discussed, another conversation with your CNS is a good idea. We have some more information on our website here that also has some suggestions of questions: Treatment options for CLL | Blood Cancer UK
It’s no wonder you feel your mental health is affected right now as this is a lot to take on - be very kind to yourself. Our Online Community is here for you and if you do want to talk to someone, please do also get in touch with our Support Services Team on 0808 2080 888. I have also tagged your post so others with Chronic lymphocytic leukaemia (CLL) can find it and hopefully respond.
Take good care of yourself.
Kind regards,
Ali
I think there will be people on here who will have more useful information than I have .They are generally lovely and in my experience always helpful and kind
Let us know how you are getting on
Take care
Thank you so much hopefully someone who is having same treatment can let me know how its going and what to kind of expect
Hi @jw6465 welcome to our forum, you are in the right place.
I am not surprised that you are feeling confused, scared and that it is affecting your mental health.
It sounds as if you have lots of questions for your medical team about fears, questions and practicalities.
@DottieB and @Ali_BloodCancerUK have given you great advice which I cannot better.
I agree that work and finances were very scary for me too.
I regret I did not communicate with my work better, but I could not explain what I did not understand myself.
Actually I did hear an eminent haematologist say yesterday that that once diagnosed a patients blood tests form less of a part of a decision on the best way forward for them.
Personally I would say keep up your lifestyle, I was diagnosed 20 years ago and I am fitter now than I have ever been.
Please do let us know how you get on and be ever so kind to yourself and keep posting.
Thank you so much for your kind words and information i have been keeping work in the loop with what i know but what you have said about bloods have made things a bit clearer as it sounds that starting treatment isnt all based on that
Hi Erica
I forgot to ask you say you were diagnosed 20 years ago have you also been having treatment or are you still on watch and wait ?
Hi Erica
Have just read earlier posts that says youve been on watch and wait 20 years so answered my above question