Sorry to hear you are not feeling so good @Jules and hope that you manage to get your surgery as planned.
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Glad to read that the neutrophils are above 0 @Spangleystar
Sorry that you can’t eat or drink much and hopefully that will improve in the coming days.
Some more virtual fresh air for you following on from @2DB water theme.
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@Jules hope you are feeling better today 
and hope you can go ahead with your surgery x
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@Spangleystar good morning sweetheart 
hope you managed to get some sleep and your Neutrphils are on the rise 
lovely that you have a hospital family that are helping see you through, nice to meet new people along the way x hope you aren’t getting too bored x
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Definitely not bored xx
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@Spangleystar good morning 
hope you are managing to sleep, weekend is on the way and hopefully you’ll be turning the corner by then and be on the climb back 
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Thanks lovely @Byrnebaby I’ve woken up feeling good today. It is very moment by moment but I’m relishing the feeling while it lasts. How are you enjoying your freedom? What have you been up to? Xx
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@Spangleystar yes, enjoy the feeling good! Won’t be long sweetheart and you’ll be home and recovering in comfort and with your family xhope you are getting plenty of calls and FaceTime, and being looked after by the staff x
I’ve been out walking with hubby before he goes to work every morning, managing 2 miles before breakfast, and then just decluttering a room each day, and trying to watch a film, but can’t get into anything.
A lovely lady I talk to on FB is doing ambulatory at The Christie this week and is talking me through it each day, so it’s not so frightening when it’s my turn 
so that’s helping me a little,
Well, you are 8 days into it now, so hopefully, maybe another 8 and you may be on the way home? X
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I’m hopeful for another 5 
@Byrnebaby glad you’re finding someone that can talk you through it. I’m finding it quite confronting at times to discuss so replying in emojis. I would also find it more stressful to hear other people’s day by day accounts because with so many different areas going on recovery isn’t the same for everyone and certainly isn’t linear. So i hope you understand why I’ve kept details light xx
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@Spangleystar oh it’s not a day by day account, more of a today was Hickman, today melphalan , today cells back, just a more reassurance about how the staff are and how easy it all is really, as we build that part up so much in our heads, I’m sure she will also go very private when the d&v and low spell happens, we all deal in our own way, and I’m helping her by ‘being’ with her through it, as she’s doing it all alone too, we can have a good chat if a night and nice to have a friendly voice x as you say, we will all have different experiences but her first 3 days will be exactly how mine will be, but I’ll be in hospital, not going home like her x you think you’ll be out in 5 days? Or you want another 13?
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I don’t think anything but my goal is out in 5 days xxx
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Which I won’t get now @Byrnebaby ! I spiked 38.8 and have been convulsing and vomiting on and off all afternoon now. Another night on fluids and prob a week of antibiotics xx
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Thinking of you @Spangleystar, perhaps it’s time for some more virtual fresh air, specifically some southern bird’s eye views…
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So sorry to hear that it has been a tough day @Spangleystar
Hopefully being well looked after by your clinical team.
Take care 
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Lovely photos @Duncan and hopefully give @Spangleystar a lift.
Recognised where they were from immediately
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Ha I bet you did @DuncanB! I love those eyrie-like views over the Hove seafront but never lived that high up myself 
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Morning @Spangleystar
hope you’ve managed a sleep and the temperature and convulsions have settled x thinking of you
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I lived up in Seven Dials for a while so got a nice view down to the seafront from Clifton Hill @Duncan
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Sound like your on the timeline.
It maybe like this for a couple days but you will come out the other side.
Once N are 1.0 and you can tolerate taking oral antibiotics you should be able to go home.
I came home day 11
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