Hello me again
So i was diagnosed with Mgus in May.…and had second tests last Tuesday at GP surgery….since been referred to the haematology dept for an appointment in our local hospital next Monday….worrying
Today I received a letter from doctors and they also found sugar now, so want to put me on a type 2 diabetes programme!
So i was diagnosed with Mgus in May.…and had second tests last Tuesday at GP surgery….since been referred to the haematology dept for an appointment in our local hospital next Monday.
Today I received a letter from doctors and they also found sugar now, so want to put me on a pre-type 2 diabetes programme!
Do the two relate…?? Any advice or knowledge greatly welcome xx
Oops sorry for repeating myself there x
Hi @Beki repetition is no problem, better than not saying it once.
I will leave others to give their experiences but perhaps it is a good question for your haematologist next Monday.
I will copy your post to the Blood Cancer UK nurse advisors for you @GemmaBloodCancerUK @LauranBloodCancerUK and @Heidi_BloodCancerUK in case they have anything to add.
Please let us know how you get on next Monday and look after yourself
Hello @Beki . I have friends who are health professionals teachers and who have had a diagnosis of diabetes . They are confident that a vegan diet they have changed to, has helped. One man completely reversed his diabetic diagnosis.
My friend suggested that for myeloma (blood cancer) a vegan diet would also help but I can’t do vegan ….. I will just eat sensibly .
Hope you get some additional advice and are able to manage your condition .
Hi @Beki, how are you doing since your diagnosis? It’s understandably nerve-wracking when waiting for an appointment with a specialist. You’re very welcome to give us a call to talk things over if that’d be helpful (0808 2080 888). Don’t hesitate to approach your medical team with your questions as it’s really so important to get the right advice for you- they’ll be best-placed to go over this concern with you.
I hope this helps, and do take care.
Hi @Mayo57, thank you for sharing your experience, and I hope you’re doing okay.
As you mentioned diet, I thought it may be helpful to share our webpage around blood cancer and eating well. It’s worth mentioning that as this states, ‘No diet, supplement or super-food can cure cancer – In fact, cutting out too many foods could mean you’re not getting all the nourishment and energy you need. It’s best to follow a healthy, balanced diet. Ask your healthcare team if there’s anything specific you need to eat more or less of.’
Quite rightly as you said eating sensibly is helpful, and there are links to resources on our webpage above. In some cases, a referral to a dietician can be sought for further support around this.
I hope this is helpful and please don’t hesitate to let us know if you have any questions or would like to talk anything through at all ( Blood cancer information and support by phone and email | Blood Cancer UK).
Hi@Becki,that sounds like something else for you to worry about but its good that you’ve had your bloods checked and can now go on the programme for type 2 diabetes I have heard that there are good results from exercise and dietry adjustments so heres wishing you well. So far as I know there isnt any relation between MGUS and diabetes.Ive had my BS checked and Im Ok but im sure that you’re Haematologist will explain all .Have you got all your?ready?.I "m finding it handy having the MGUS diary from Myeloma UK ,they will send you one out, 0800 980 3332,you can record your results and write notes,plus it will fit in your bag !
I hope that after Monday it will alleviate your worry ,it is always a worry from my experience but by being reffered you will have a plan and thats always better than wondering.My GP referred me to the Haematologist and we got a written plan back so we are all "singing from the same sheet"which helps, your GP sounds really caring .
All the best for Monday,I hope you are finding something relaxing to do in the meantime,and looking after yourself. Smiling
Hi@Becki,how are you doing ,I hope that your Haematology appointment your well for you and that you had your concerns listened to with a way forward and that you are feeling better for it.
All the best
Thankyou for thinking of me
I apologise for not letting you know earlier…but how sweet of you to ask me.
I went to the haema/cology appointment…my m spike had slightly risen from 1 to barely 2…but she was a more concerned with my symptoms than the rise.
I keep losing balance, headaches pretty much everyday…burning hip/back pain and peripheral neuropathy. Also have tinnitus now
She is sending me for MRI scan so she can see what’s going on hopefully and perhaps then a bone marrow biopsy.
So I’m waiting for scan now…it’s a waiting game isn’t it
Anyway i hope you’re all doing ok…I will post again once I’ve had my scan.
Hi @Beki your symptoms sound horrible and I am glad your haemo/cology consultant is looking into it for you with an MRI scan and perhaps a bone marrow biopsy.
It sure is forever a waiting game and that is the hardest thing.
Yes, please let us know how you get on.
Look after and be kind to yourself.
Hi @Beki I am still thinking of you and I wondered how you are feeling now and any more tests and results, although I know it is a waiting game?
Look after yourself
Thankyou for thinking of me, and taking time to message me
I saw the oncologist as you know, my numbers had stayed the same from the previous bloods taken, but she was concerned about all the symptoms I am getting. She took bloods that day, but I haven’t heard anything back.
So she has referred me to have an MRI scan which is this Sunday evening (strange day/time!) in my local hospital.
Also she has booked me in for more bloods on the 14th sept….which is only 8 weeks since my last bloods!
I am worried to be honest…there only seems to be 6-8 weeks between my blood tests at the mo….I was told every 3 months and if no changes then twice a year.
Hope you are well
Hi @Beki I am sure that you are worrying.
My husband has just had a hospital appointment through for a Sunday afternoon and a friend has just had one for a Saturday…
I have also had blood tests timing varied over the years.
The waiting game again I am afraid and it is horrible but, it seems to be what we often end up doing.
Look after yourself and please keep posting, we are here for you.
Hello@Becki,sounds as though you are being thoroughly assesed which is all good although it is worrying but better than not having any investigations at all ,they can then rule out if nothing found or go further. I had an MRI on a Sunday as @Erica said was her experience of a Sunday. I also have had phone apps on Saturday ,they are trying to remove the back log,its not what we are used to but these days anything goes.After your labyrinthitis loosing balance is common ,if you wanted to google Menieres Society they have good exercises to improve your balance ,I do them.
And tinnitus is common too ,I have it but got used to it and get my ears syringed lol I have narrow canals !!British tinnitus have a website with good advice.I know how worrying it can be ar this initial stage .When I first had MGUS it was advised to have all sorts of investigations which adds to the stress and the waiting is the hardest, especially at your young age,not that it gets easier .Have you got something nice planned pre and post MRI to take your mind off .?plus how are you with the diabetes?.
Thinking of you @Becki, take care
It’s understandable to be worried @Beki but you can only deal with what you know for certain and then explore your options. We’ve all had to wait for test results on here and it’s horrible but your tests being a bit more frequent doesn’t necessarily mean a bad thing. My blood tests have now been made more frequent but I’m still living a very normal life and the disease hasn’t completely flared up again yet. I’m just taking things one day at a time and enjoying what I can when I can. I hope you are able to too but let us know how things go.