Hello everyone, my partner has just been diagnosed with mantle cell lymphoma. He doesn’t really know how to take it in. He couldn’t believe it and he asked for second opinion of another imaging to be done. We are awaiting an appointment from the hospital. This is so frightening for us. Can it be cured, we don’t know, we need information about this please.
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Hi @Babatundemi and welcome to the forum.
I’m sorry you find yourself here but hope that you find value in the support you will get from your forum family.
What we all remember, regardless of our specific diagnosis is that shock of hearing it for the first time. Emotions are all over the place and a rollercoaster of a ride, for both the patient and family and friends supporting them.
I can imagine you have so many questions and just getting your head around all of this is so hard.
One thing I would say is just take each day at a time. There is often a lot of waiting between appointments so if you can, try not to google and use reputable websites, such as this for information.
I have included the link below on mantle cell lymphoma which may help, but only when you’re ready to look at it.
It may be that you need to talk things through and the support line is amazing.
I know how frightening this must feel for you both. Our minds naturally go to worse case scenarios when we don’t have all of the information. I hope your appointment comes up soon but remember there is support whilst you are waiting. Write down all of your questions. No question is to small or too silly to ask. This will help in preparation for your first appointment. I also know that there will be other forum members who can share their experiences with you.
Please take good care of yourself. It’s a complete shock for you both and it will take time to process everything.
Sending you both lots of love X
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Hi @Babatundemi I am so glad you have found us and @Nichola75 has given you a brilliant response and information.
Yes, I also found my diagnosis frightening and came home and wrote my will and funeral music, I am still here 20 yrs later.
It threw my whole life upside down.
I could not explain to family, friends and work what I did not understand myself.
I expect you will get more information at your next appointment at the hospital.
At that point your husband will be able to ask the questions @Nichola75 has advised you write down.
I hope you will be able to use this space to say how it really is for you. I found my husband and I dealt with my diagnosis very differently, he is a head in the sand type of guy.
Please do let us know how you get on and be ever so kind to yourselves
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