I have MGUS and have had 4 vaccine doses and was invited for the 5th. When I got there the clinician refused to do it - he said MGUS was not an eligible condition. My GP checked with my consultant who agreed that, as I have not progressed to myeloma, I am not eligible for the 5th vaccine. A few days after my non-vaccination, I tested positive for Covid and - hey presto - MGUS is eligible for antiviral treatment (which I received without any complication at all). I’m grateful for the antivirals but confused about why MGUS is considered significant enough for that but not for the booster dose. Anyone else with MGUS received their 5th vaccine? I won’t bother chasing it now that I have Covid anyway but it doesn’t feel very logical.
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Hi @NanaNana,I have MGUS IgG Kappa on 12 week watch and wait.I was surprised when I received an invitation for a spring booster,4th which I had.
I am sorry to hear that you have covid and hope its not affecting you too badly.Its good you got the antivirals and it makes me feel more reassured if i get covid ,so thanks for posting.I wouldn’t have known I qualified ,who knows, sounds like you have had a right mix up .
All the best
Bannanacake
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Hi Nananana,
Thank you for posting this. Very useful information for us all. I have had the standard two Covid shots plus booster shot.
Wishing you a speedy recovery from Covid.
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Hi NanaNana hope you’re feeling better. Think we are having another pike in covid as all just getting over it too in our house. I didn’t know i was entitled to the antiviral medication or a 3rd & 4th covid vaccination. I have MGUS like you. Think the government is very poor on the advice for the vulnerable now. They just want to forget about it. Take care.
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I am feeling pretty normal now after 12 days. I wasn’t very ill with Covid - just extremely weary and some nasty headaches… For the first few days I had a really sore throat and a bit of a cough but that all disappeared very quickly when I started the antivirals.
I received letters and text messages asking me to book the vaccinations. I wasn’t sure about whether I would get antivirals but I asked my GP and he referred me to CMDU. The lady who phoned me from there said that MGUS has recently been added to the list.
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Hi Nananana
So glad to hear your feeling much better.
I am a little baffled about entitlement to Covid jabs. I queried this with my Haematologist and the reply I got was people with igM Mugus are not immunocompromised and are not entitled.
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That is what my haematologist is saying about the Spring booster (5th jab) so I haven’t had that but I did get the others - letters and texts from NHS.
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Hi @NanaNana, Sometimes I think its a postcode lottery. I’ve had three months of being told by my GP surgery that MGUS doesn’t qualify for the 4th booster. I had Covid in April and didn’t qualify for antivirals. Last week out of the blue I got a message saying I needed to book the 4th jab as I have MGUS. Needless to say I booked it quick and got it before they could change their mind again. I just wish all medical professionals were on the same page regarding these things. Take care of yourself.
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Hi Nananana
My haematologist told me Mgus patients werent eligible and arent specifically mentioned on the guidence issued for the 5th dose. In the next sentence she advised me to get a booster if I could. I tried to get a letter from my GP, but the locum was unable any letters from my consultant. So that was a non starter. He advised book an appointment with 119 and take copies of hospital letters with me. So that is what I did. I have now had a booster, Moderna. I told them I had mgus and they were satisfied. There was some uncertainty as to whether it should be recorded as first or second booster, but I decided to keep quiet.
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Sorry the locum was unable to find any letters from the haematologist
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