Hi everyone. Today Iam on day five, half way through my first round of treatment for Acute myeloid leukaemia (AML), apart from day one I have had no side effects though Iam almost certainly going to lose my hair, but Iam not scared of that, just of what I might look like. Biggest issue for me right now is how lonely, vulnerable, and isolated I feel. Missing out on family time, especially the grandkids over the easter is hitting me hard, thankfully we can have video calls but not having a hug which I crave is so hard. The food also gets me down because at times it is cold or just not very appetising.
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Hi @Caroline30,
It sounds like your treatment thus far is going really well- long may that continue.
I’m sure so many will appreciate you being so honest at how hard the mental aspect of treatment can be. Being away from family whilst going through so much must be incredibly difficult. Although video calls are great it will not replace the hugs, personal touch and certainly nothing will beat a homecooked meal. Are you able to have a visitor in just now that can maybe bring some snacks to look forward to?
Where possible keep reminding yourself that this is short term. Surround yourself with new things to focus on- If you are able perhaps try a new hobby, learn a new skill of course if you feel you have the concentration. Also never hesitate from calling our support line to just have a chat- as we would love to support you in any way we can 0808 2080 888.
Take good care, Lauran
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Oh @Caroline30 I really felt for you when I read your post.
Nothing does compare with physical contact and I cannot say it does.
Perhaps just knowing you also have your forum family engulfing you because many of us have had similar feelings, especially during Covid isolation times.
It is interesting that that time really was the explosion of in the use of video calls.
Whenever I am in hospital I also feel very lonely and vulnerable.
Please do keep posting how you are and try and do things to divert yourself.
Also the Blood Cancer UK support line are wonderful on 0808 2080 888
Family time is absolutely priceless and grandkids well I cannot put it into words.
I am sending you a great big virtual hug, which I realise is no substitute, xxx
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Hopefully it won’t be to long before you get that hug. I can imagine it’s just so hard. I bet your grandchildren are missing you to and waiting for that hug as well.
Sending a virtual hug (again, not as good as a real one) and wishing that treatment to love as quickly as it
Can X
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