Hi @Chris47 and welcome to the forum.
Wow - that must me such a lot to take in and I can imagine itās all very overwhelming.
Lots of the members on here will be able to relate to what you describe, especially the effect on your well-being.
I had no symptoms when diagnosed with lymphoma, again, just by chance. Iām also on watch and wait and it can be a hard thing to get your head around.
Itās great that you are keeping up with all the things that help you. My advice is just to take it day by day. Emotions will be up and down and you just need to go with it.
Have you got a good support system around you? Iāll post the link to the support line as well.
Please keep posting. You are never alone on here and we are here to support you throughout X
Hi @Chris47 and a great big welcome to our forum.
Wow, you have had a double whammy and shock and so much to take in.
However you are in the right place if I may say so.
Quite a few of us were diagnosed when having tests for something else.
I was diagnosed after having a gynae op 19 yrs ago with another blood cancer and I have always been on watch and wait (active monitoring). I am now 73 yrs old.
I had a keyhole hysterectomy about 7yrs ago and it was the best thing I ever had done.
I really realise yours will be a far bigger operation and recovery period.
Please donāt be hard on yourself as 2 diagnosis takes a long time to come to terms with.
I always say my emotions have been on high alert since my diagnosis and I can be fine one minute and in tears the next.
I donāt deal with what personally stresses me well either, it really fatigues me.
As you I know the theories of a day at a time and mindfulness, but I often lapse.
I am also a great daily walker and I agree with you that it does wonders for my mental health.
@Nichola75 has given you details of the Blood Cancer UK support line if you need them and I will give you a link to the Blood Cancer UK link to mind and emotions Blood cancer: mind and emotions | Blood Cancer UK
Be kind and really look after yourself and please keep posting as I would like to hear more about you
Hi Nichola75 thank you so much for your words of encouragement. It is a comfort know that there is brilliant support on this forum.
Hi Erica, what a lovely welcome to the forum! I really feel Iām amongst kind and supportive people. Everyone is trying to cope with varying health issues but aiming to live life as fully as possible. I am a great believer in the power of positivity, but I have to admit that for the last few months I have been on an emotional roller coaster ride, so I will definitely check out the link youāve given me.
Hi @Chris47 I just wondered how you are doing now?
Look after yourself
I am Sarah and I am 22 years old. I am currently looking for a diagnosis. I have had Leukopenia for the past 4 years (possibly earlier), and recently I developed a macrocytic anemia.
I am very uncertain and scared and feel like doctors donāt consider serious diseases because of my age.
But this forum has been very helpful so far 
a great source of support!
Best wishes to you all!
Love, Sarah
Hi @SarahD1702 I have also read your other post.
Remember that you have your forum family to support and surround you.
Have you anyone that can accompany you to appointments, I know that helped me and I am aware your next appointment is not till February.
The Blood Cancer UK support line is also there for you on 0808 2080 888
Sending you virtual hugs xx
Routine blood test in 2018 revealed out of range white blood cell count of 26. Two days after the test I was diagnosed Grade A Chronic lymphocytic leukaemia (CLL) by hospital consultant and placed on 6 mthly blood count monitor. No symptoms and feeling like a fraud but pleased to receive appointment with consultant on Wed after Oct white blood cell of 83. Physical examination found small lymph node swelling in neck. Now waiting CT Scan that is booked for this coming Sunday.
Hi @Horsetrent a great big welcome to our forum family from a fellow Chronic lymphocytic leukaemia (CLL)āer
I was diagnosed with Chronic lymphocytic leukaemia (CLL) 19 yrs ago and I have been lucky enough to be on watch and wait (active monitoring) like you have been on.
You show the value of it as it quickly picks up any anomalies or changes.
I know I have felt a fraud in the past and that I should not be on this forum etc.
I do get fatigue but manage it.
What I have found is that I share with many others on here similar thoughts and feelings like anxiety before and during all tests, results and appointments.
Please do let us know how you are doing and I look forward to hearing more about you.
Take lots of care
Hi Erica, thank you for your msg.
My appointment on Wed marked exactly 5 years since my diagnosis and the only sign of Chronic lymphocytic leukaemia (CLL) has been the xl spreadsheet on which I record my blood test results. So no sign of any symptoms in that 5 years and Iād not felt the node in my neck myself until my consultant felt it on Wed. So will await the CT results from the check on Sunday with a lot of interest.
I play a lot of golf and Iām a biker having ridden the NC 500 in Sept. I got back into biking 2 years ago having given up by selling my last bike in 2005. At 78 Iām probably a little late getting back onto a motorcycle, but I just love it. My wife of 57 years next April used to sit behind me, but not keen now.
Horsetrent
Hi @Horsetrent I am a 73yr old girl who enjoys walking we are lucky enough to have a towpath and a few parks of differing sizes nearby.
I am also a Pilates girl, it has saved me and my back.
I love music an eclectic mix from the 60ās till now.
If you are interested there is a Friday Jukebox thread on our forum. Someone posts 2 random words on a Friday and we all come up with our 2 songs, preferably with their links.
Enjoy your fresh air too.
Hi everybody, Iām Sue and Iāve just started as a forum support volunteer. I wanted to give something back after my Acute myeloid leukaemia (AML) journey. Diagnosed in Feb 21 after about 4 months of not feeling right, various symptoms that werenāt tied together so a late diagnosis. Severe tiredness, pinprick rash, horrific bone pain in shoulders and spine, moments of dizziness, confusion etc. Initially 5 weeks in hospital undergoing 1st bout of Acute myeloid leukaemia (AML) 19 trial chemo. 56 chemo in total over 4 rounds lasting 6 months. Remission reached Sept 21 and then a long recovery period. I still have days now where I feel so tired or fatigued I believe is the proper terminology. I believe my positivity throughout my treatment helped me so much after all being in isolation, bald, unable to walk you name it, I think I decided to see a humorous side to it all which certainly helped. So sending positive thoughts to anybody who is suffering and I will do my best to help.
Hi @Suenew1967 and a huge welcome to the forum 
Oh @Suenew1967 so glad that you have joined our merry band.
You have certainly gone through a lot since having a lockdown diagnosis in Feb 21.
I am a great one for a sense of humour and I see things very visually in my mind.
I think your post will help so many others, plus all your separate experiences.
Be kind to yourself as well.
@Erica thank you so much, currently working out how to navigate round the forum! Yes humour and visualising helped me immensely and I take time out for me often itās so important. We all have unique experiences along the way donāt we. You take good care of yourself as well
Hi everyone! My name is Joanne and myself and two members of my family - my daughter and my Mum - have a history of being diagnosed with Lymphoma.
In 2010 I was diagnosed with Non-Hodgkinās Lymphoma - (mediastinal Large B Cell). I had 6 sessions of R-CHOP chemo along with Rituximab and 15 doses of radiotherapy. Thankfully I have been in remission and then after 5 years was cured. At the time we lived abroad so I had to be repatriated whilst my husband and 2 children remained abroad so the children could continue their education until the end of the school year.
Fast forward 5 years and my 19 year old daughter found a lump in her neck and was diagnosed with Hodgkins Lymphoma. She took it completely in her stride and had 3 months of ABVD chemo. It was absolutely awful seeing my child go through this but the fact that I had already been through it and she had seen me come through the other end helped her massively. Thankfully she is absolutely fine now. We thought that would be the end of our Lymphoma experiences but apparently not as my Mum, at the age of 83, was diagnosed with Hodgkins Lymphoma in 2017. She underwent chemo and radiotherapy and made a full recovery. Saldy in April 2020 she found another lump in her neck and was diagnosed with Marginal Zone Non-Hodgkins Lymphoma. For this diagnosis her ( and my) consultant felt a āwatch and waitā approach was the best and strangely she had no treatment for this as the lumps simply seemed to disappear, though Iām sure it was just lying dormantā¦ However, around 18 months ago, as a result of a routine CT scan, it was found that unfortunately Hodgkins Lymphoma had returned. She was given three weekly treatment of Vinblastine which seemed to keep it under control. Sadly my Mum passed away this year in March aged 88, though there were further health complications (heart failure, chronic kidney disease) which led to this sadly.
I wanted to give a little back after the amazing treatment we all received so decided to join Blood Cancer Uk as a forum support volunteer. So here I am!!
If I can help just one other person that would be amazing.
Hi @Joanne01 a great big welcome as a Forum Support Volunteer it is great to have you on the forum.
I am so sorry yo hear that you lost your mum earlier this year, perhaps this time of year will bring up a lot for you so be kind to yourself.
I expect you will restart the discussion whether a blood cancer can run in the family or is the luck of the draw.
Are you in the UK now?
I really look forward to getting to know you.
Look after yourself
Thank you @Erica ! It is a case of getting over all the āfirstsā since I lost Mum. I am an only child and Mum lived in an annex in my garden, we were very close and I miss her so much and Christmas will be very different this year.
When my Mum was diagnosed in 2017 I did ask my doctor and she sent the information to genetics but basically it is seen as not genetic, so basically the luck of the raw unfortunately. It is very bad luck as between us we have had 5 diagnosisā of Lymphoma within 13 years.
We now live in the Uk and have been since 2010 and my husband rotated abroad from 2010 until 2021.
Hello everyone 
Iām Maggie and Iāve recently started as a Forum Support Volunteer.
Iāve been living with Chronic myeloid leukaemia for almost 12 years. Having started out on Imatinib, I then moved to Nilotinib and for the past year have been trialling being off the meds. Iām monitored closely and am pleased to say that so far so good!
Reading through posts on the forum, I can relate entirely and am so happy to be able to be a part of this community so I can share my experiences and hopefully help others as we each navigate our own journeys. It is so wonderful to know that none of us are on our own.