Well, I’m just over 2 weeks post diagnosis, and I’ve purchased a pack of face masked that i keep in the car, so i can have one with me at all times. Like you, I’m making an educated decision to wear one, and being safe wherever I’m not 100% comfortable (e.g. crowded areas / shops / at work)
My most recent sift (yesterday 2pm to 10pm (my long day as i call it)) resulted in a number of customers asking if i was okay, and showing care and support towards me. Beyond this, a number of colleagues enquired, and again they were very supportive. It made me feel better, allowing people to understand my circumstance. The management where i work have been very supportive and professional and i feel very safe.
I’ve just about got over the head cold i picked up Monday the 14th of April - thank goodness - and feel much stronger (head colds really zap me).
Were all hear for each other - and again - thank you for your kind words and advice
Hi i am david i live in south west scotland, i was diagnosed with Chronic lymphocytic leukaemia (CLL) in may 2025, i am 79 years old, still getting over the shock. I have had my initial assessment, no treatment at the moment, 2 monthly monitoring, watch/wait & hope . At present finding the forum a mixture of hope & fear, but think i will get used to it. Keep up the good work fellow contributors.
Hi @Daveyboy a great big welcome to our forum
I am a 75yr old female and I have had Chronic lymphocytic leukaemia (CLL) for 21 yrs on watch and wait (I prefer to call it active monitoring)
I think it is very natural to still be getting over the shock it took me ages.
The Blood Cancer UK support line is 0808 2080 888
I hope others will share their experiences
I look forward to hearing more about you and really look after and be very kind to yourself
I also have Chronic lymphocytic leukaemia (CLL) after having my diagnosis given to me on the 10th of April this year
I’m 57, and felt absolutely fine, but the shock of the diagnosis really does knock the wind out of you. So, like you, I’m now on active monitoring, with regular blood tests etc.
Biggest change is avoiding crowds and / or wearing a face mask to prevent catching any infection.
A healthy high whole-wheat diet and exercise have been recommended to me, along with ensuring a good sleep pattern is followed. In short, as im sure you been advised, look after you.
I hope you find the forum a place where you can speak freely and find some confort and advise.
Hello mike, thanks for your message of 1st june 25, yes i too feel fine, well for my age anyway, i take your point about avoiding crowds etc and also regarding a healthy diet. I appreciate you taking time to contact me, it is early days at the moment i can imagine we gain more confidence as we continue this journey. All the very best. David
Hello erica, thanks for your message it is great to hear from you. I find it very comforting your comment about dealing with the diagnosis and getting over the shock. I only found out by having injured my finger and having pre op tests, went in feeling bad about my finger came out feeling much worse. once again thankyou. David
Hello - adult child diagnosed with poor prognosis Acute myeloid leukaemia (AML) in 2024. I’ve been on here quite a while but have never posted. Didn’t want to “hijack” anyone else’s story. This is an incredibly informative and helpful website, especially this forum where experiences can be shared. You are all so brave! I have especially followed @Toadmum (I hope you weren’t finding me “stalker-ish!”) and @SarahMum as your stories mirror ours in so many ways. In any case, just saying hello and making myself known a bit. We have hit a terribly rough patch with treatments recently. I have found comfort reading @Erica supportive comments, too.
Oh @EverHopeful hello and thank you so much for posting and a great big welcome to our forum family.
It sounds as if you and your adult child have had your rough patches too.
I expect those maternal ties are so strong, yet you are also so powerless to make things better.
Always feel free to just read posts on here, but I would really like to hear more about you.
I find this forum is the one place that I can say how it really is to be me.
The Blood Cancer UK support line is also there for you on 0808 2080 888
Please do look after yourself as well as you are trying to look after your child.
You would never be hijaking a thread! Feel very welcome to post along on mine about your experiences. The more the merrier - it certainly helps me hearing about others experiences too!
How are you doing? Truly sorry you’re also navigating this but a warm welcome, and a quick note to let you know that you’re not alone.
I am sorry to learn of your situation and feel free to use this safe space as you wish. You would never hijack a post. We all seem to jump in and post wherever but someone will always pick up your post and get back to you. It is usually the lovely @Erica who is a very special person
You will know from my post that we also had a poor prognosis. It seems a lot of people do with blood cancers. But none of us will know the outcome, not even the most highly trained medical professionals. I think a big part is being positive and taking each hour as it comes (easier said than done on some days I know?!)
Feel free to keep using this forum as you wish. Take good care of yourself in all of this too.
Shout if you need ‘owt. We are all here for you.
Sending love and positive thoughts
