Oh, @Walburd it sounds a really difficult and anxious time for you.
I hope you can manage something enjoyable for you as well this week.
Look after yourself as well as you look after others.
Just finished all.my K2 training
Need to get back onto my ESr to see what else I need to do
Getting my haircut tomorrow and sorting my sister out then try finish Xmas shopping
Need yo sort car service mot and insurance
Keep myself busy then dont have to much time to think about things
Back to nights at weekend
Still awaiting occupational health
Next hospital appointment 22nd
Hospital set up patient online portal so you can check appointments and care plans etc So thatâs good
Hopw everyone doing well
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Gosh @Walburd I am worn out just reading your post.
You have done well with your training.
A haircut makes me feel better and I hope it goes OK with your sister.
Xmas shopping is putting me to shame, I havenât done any yet.
Cars take a lot of sorting out and expense donât they.
I sometime think I look after my car better than I look after myself !!!
You really do care for others, take care and spoil yourself as well, you deserve it.
Hi Angie
I was a midwife in the NHS for 20 years and now work as a health visitor. My managers have been very supportive since my diagnosis of Polycythaemia vera (PV) 5 years ago.
I had a shielding letter from GOV and worked from home. Iâm now back in the office but having no face to face with clients. There is so much research out there at the moment and if youâre like me need the information.
Iâve had 2 covid vaccines and my booster but I am still not doing face to face due to some of the research suggesting poor responses with those with blood cancer including Polycythaemia vera (PV).
I have just revalidated but Iâm not sure that I will practice for much longer as I find the fatigue so difficult. I was falling to sleep writing my reflections 
. I really think you need to think about speaking to your manager about this as the clients we both deal with are at the peak of the covid pandemic often not immunised with little ones who also wonât be immunised.
I hope this has been helpful. Please let me know if there is a anything else I can help you with.
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Hi Angie,
I agree with @Jackgirl10 and dont think you should be patient facing. My haemotologist said until we know how effective the vaccine is on us blood cancer patients then they want me non payient facing. In my area i would say around 50% of pregnant women are refusing the vaccine and we are seeing so many that are covid pos. Can you go sick untill they have a plan for you
Mandi
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Thank you@jackgirl10
I donât think.my trust will be as supportive as yours, just got that feeling
Am still awaiting my occupational referral and I suppose I will discuss everything with them
I donât want to uo to PN ward
I have tried to get in touch with my nurse specialist to ask her questions but not had any response qill try again tomorrow
I have telephone consult with haematologist on 22 nd ov so am going to write down.some questions.for them.too
I can cope with my diagnosis I know I have to learn to live with it, but not knowing what to do for best at work is stressing me out
Am not a person to sit still but I must start to learn to slow down u suppose
Itâs hard when I do everything for my sister who schrienpenia diabetic and sheâs not well at present
I also see to her and my.mum financial situations
Am considering getting my pensions back from Nz so I can pay a good amount off my mortage means I wonât have as much when I can retire but I need it now and not in 12 yrs that way I vould probably reduce my hours
All your information is very useful and am so glad I have found others on this forum yo talk too
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I always feel guilty phoning in sick only had 2 days in 7 yrs
I will email manager tomorrow and see if sheâs sent it
Itâs hard not knowing what to do for the best
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Xmas shopping done nearly all wrapped finishing them tomorrow
Car booked in friday
In process of enquiring about my NZ pension donât what to do with it yet
More training finished
Just a question has anyone claimed off their critical illness cover on their insurance for their conditions
I have life and critical illness cover for ÂŁ140000
ÂŁ40000 for critical illness rest is life
Just wondered thatâs all am sure the companies will found a way out of it
Am with Royal London
Has any of you got any animals love my pets
3 dogs
2 cats
1 tortoise
Fish tank - not that keen on tank
2 kids /adults 1 hubby suppose I have to throw them in
We have to keep smiling keep busy keep positive
Hope you are all keeping well
Take care everyone
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I canât help with pensions or insurances @Walburd, but I am impressed with the number of pets and family members you have.
I have an adult son that lives locally and a husband, thatâs enough for me.
I am keeping on smiling at the number of pets you have.
You also seem very organised for the festive season.
I am impressed that you are writing down the questions you are going to ask your haematologist, I do the same and I am also a girl for lists.
Yes, the sun is shining and the day is going well, look after yourself and keep posting.
Hi @Walburd. Thatâs a very busy morning!
I claimed on mine and was a really quick process. No issues. I hope itâs the same for you 
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Hi Angie I claimed on critical illness cover with no problems. I just sent off a copy of a consultation letter which had my diagnosis. I had the same attitude as you regarding sickness and took great pride in saying Iâd only had a few days over many years. But take it from someone whose been there and got the T shirt itâs not worth it you are only small cog in big machine and when you leave you are soon forgotten.
I had lots of symptoms from Polycythaemia vera (PV) and was told my symptoms were menopause and when I was having horrendous headaches and hypertension sometimes as high as 230/120 I was told the headaches were a red herring!! Thank goodness I was persistent and saw quite a junior GP and asked for a psychiatric referral as if there was nothing wrong with me I must be going mad as I felt as if I was going to die. Although I still didnât go off sick.
She took a load of routine bloods and thatâs when I had a call the next day to go straight to the hospital for venesection. I think you need to print off as much of the recent research on mpn and covid which suggests we are at higher risk of dying from covid and that there is a question over whether we convert well to the immunisation and take these to your manager and occy health. We have had several very sick pregnant women over the last few months and Iâve decided itâs time to look after my own health for the sake of my family. Sorry about the rant but I hope your manager and colleagues realise that mpn is an unseen illness and donât make you feel guilty about being off. I know there is no way I could do a 12 hour shift on labour ward any more and in the words of a good friend âyou shouldnât be afraid to cut the cordâ I know being a midwife is a vocation for many of us but not if itâs detrimental to our health.
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You given me alot to think about
So did you claim for your Polycythaemia vera (PV) off your cricital illness.triwd yo look on my policy and unless you have treatment your not covered
Also another question done need to let my insurance company know about my diagnosis
So many things going off in my head
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What illness did you claim for and was you on any treatment
I have got alot to think about
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I have non Hodgkin follicular lymphoma. Treatment had finished and I was on active monitoring. I was with Aviva. Has it got any specifics on the insurance documents? I remember I had to call them to find out more as I got totally confused with all the jargon. My consultant also had to complete paperwork.
Hope that helps 
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Hi @Walburd If there is a specific question about medical conditions on your insurance policies then my understanding is that in the small print it probably says that you should update them about changes to the policy details, like your medical conditions.
If you take any new policies out then you have to be honest with all your answers.
I will be interested to hear from others.
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I think I will.try get in touch with my insurance advisor and ask those of questions to haematologist at my next appointment on 22nd
I have started enquiring about my funds in NZ
In fact do quite a bit in last few days
Xmas shopping done wrapped and put away
Sorted Sister POA
Had lovely walk with hubby son and dogs today
Got some training updated now to get my revalidation sorted
Going to get mu.out of nursing home tomorrow take her to see her cat
Hoping my car ok for MOT tomorrow
Still canât quite get my head around everything had a silly dream last night that I had a stroke
Do Ă nyone else have these silly thoughts
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I have been in touch with my insurance advisor and I donât need to inform them unless I claim
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Wow @Walburd you have done so much over the last couple of days.
That walk with your hubby, son and dogs sounds very special, I now realise that the best things in life are free.
Getting your mum out of her nursing home to see her cat sounds lovely for you both and the cat.
Wish your car good luck for the MOT tomorrow.
Glad that you have spoken to your insurance advisor for peace of mind
Yes, when I was diagnosed it felt surreal, I wanted to pull the leukaemia out of me and I felt in a bubble with the world going on around me as normal.
How did others feel?
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Anybody got any advise about all the sweats as they disturb my sleep
Sheets on sheets off
Whatâs the best treatment?
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Always love seeing my.mum she puts a smilemon my face sheâs so funny with her dementia which is good because alot can be aggressive
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