Am not one for sitting still
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I think my thought is to check the night sweats out with your GP because your night sweats might be a symptom of another condition, sometimes I think every symptom I have is of my blood cancer, but they are not.
Let us know what your GP says.
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Hi Erica I have myelofibrosis been on ruxolitinib for 5 months and was told to be very very careful of the sun âŚmy grandaughter lives in dubai and offered to pay for first class travel to dubai but with fatigue and muscle aches and worry about the sun I wonât go how does everyone else cope with restrictions due to their diagnoses good wishes to all
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Hi @Suzyq I was diagnosed 17 yrs ago with another blood cancer and in 2016 I was diagnosed with skin cancer on the top of my head. I was told it was because I had fair hair that was fine and was pale skinned and did too much sun bathing (in South East England) in my life. No connection was made with my blood cancer and I never thought of it.
I now wear a fetching hat in the sunshine.
Some people do travel to hot climates, that are far away, with such symptoms.
Perhaps a purely non medical thought is to discuss it with your medical team as you are on treatment, travel at the least hottest time of the year, if Dubai does have one.
Fatigue wise I factor in my fatigue so if I am travelling I would say to the person I was visiting that I might have jet lag and fatigue so I might need to rest for the first couple of days after arrival and that if I am doing things I might need short days, a nap or whatever works for you.
I believe hones, open conversations are best, other people perhaps donât understand what it is like for us, especially when they might be young and fit !!!
As for the muscle aches, flying 1st class is obviously the best way to travel.
Then there are Covid restrictions and requirements in both countries perhaps to think about.
How to take medications into countries might need to be thought about and supplies in case, for some reason, you are there longer than planned.
Lastly making sure you have travel insurance that know about your medical history so you are covered if you had to claim.
Just thoughts which I hope might help.
What are others thoughts?
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Hi Angie
I claimed on the polycythaemia itâs classified as a blood cancer so was able to claim.
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OK thanks
I have spoken to my advisor and heâs looking into it
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Hi @Walburd please let us know how it goes.
Has anyone else got any experience of claiming?
Hi I not actually claimed am just letting them.know my diagnosis
Am awaiting reply from.my advisor but I will let you know the outcome
Hope everyone doing ok
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Am.still.awaiting my occupational health referral still not heard from nurse specialist Iâll try ring them again tomorrow see what advice they give about what to do at work
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Everything takes so long doesnât it. 
you hear back soon.
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Hi Angie
I too have Polycythaemia vera (PV).
I find a sheet and light cellular blankets help cope with the night sweats, I can easily adjust my warmth by throwing off or pulling up a blanket. Cannot bear a duvet. I also find it handy to have an old cardigan handy to slip on and off as required. Hope this helps. Marylin
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Hi
I read somewhere that altitude affects the oxygen in your blood cells, last time we flew to NZ business class courtesy of my generous son to see him, two years ago, when we arrived I was so exhausted I could only sit in a chair for the first two weeks. I didnât know I had Polycythaemia vera (PV) then. Arriving back in the U.K. in January I felt most unwell until a clot in my lung and a septic clot on the portal vein of my liver were discovered in March 2020 at the beginning of the covid crisis. Polycythaemia vera (PV) was not diagnosed until July 2021. I donât think I will be able. To fly again, cargo boats donât take people 80 + and a cruise doesnât appeal, fear of being trapped on a covid infected vessel. The travel insurance costs before Polycythaemia vera (PV) were about ÂŁ1500.00. Goodness knows what they would be now. Definitely flying needs to be discussed with haematologists. Hopefully my son will be able to travel here soon.Marylin
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Yes @Marylin, isnât it interesting looking back at our medical histories fairly soon before diagnosis.
Talking to your haematologists sounds a plan to me and you also have a Plan B of your son coming over here.
Look after yourself and please let us know what your haematologists say and what you decide. Donât forget my trick of writing down everything you want to say or ask beforehand.
What are others experiences?