Night sweats your experience

I have posted on here before mainly about bone pain, I have not been diagnosed with leukemia. But quite worried for a number if reasons.

I wanted to ask about people’s experience of night sweats prior to diagnosis, I was recently on an anti anxiety pill which I felt had been causing my to sweat at night. I have stopped those now but am still getting the sweats, the really odd thing however is that I always get them within the first two hours of sleep after tyat for the rest of the night I seem to be ok, so was wondering if this was unique to me? Thanks Alan

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Hi @Red1, I have never had a particular problem with night sweats, my inner thermometer doesn’t work very well though.
I have never had bone pain.
You say you have not been diagnosed with leukaemia, although you have obviously felt anxious.
Have you talked to your GP about why you feel you might have leukaemia and what have they said?
If you would like to talk to someone you can contact our Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday, and 10am-1pm Saturday and Sunday) or via email at support@bloodcancer.org.uk.
Take care of yourself.

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@Red1 Alan, I found the blood cancersymptom tracker from last year if that is any help. Best wishes

Before I was diagnosed with CLL the night sweats would wake me up and they were bad enough to get out of bed and dry myself off and put a towel on the pillow and on the bedsheet because they were cold and damp, this went on for a month or 2. It was usually between 2 -4am. My wife comments that I am always hot (heat not attraction🤣) even though I don’t have a temperature.

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I had night sweats for at least 3-4 years before I was diagnosed with T-LGLL last October. I still sweat but at the moment it is because of my medication. I am hot (atm with mild temperature), and sleep fan on most nights. I think our symptoms varies hugely and even with multiple blood tests it isn’t always straightforward to be diagnosed with blood cancer. Speak with your GP about your symptoms. :orange_heart:

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@Red1

Hi Alan,

It’s really good to hear from you, hope you’ve been doing okay?
I’m so sorry to hear of the night sweats you’ve been experiencing, this does sound so uncomfortable for you. I echo @Erica and wondered if there has been any further opportunity to talk to your GP about this?

Su

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Latest blood have shown increased monocytes, whilst the Dr doesn’t seem worried I can see that high monocytes can be a sign of CMML.

However this is such a rare disease it’s unlikely but also impossible to find much info about.

I have sent the blood results to haematologist for comment. No news as yet.

Al

Hi @Red1, how are you? Just messaging on this thread in case you missed my reply. Waiting for results and what the diagnosis may be can be a difficult time. Have the treatment said what the next course of action is. Are they going to refer you for further tests? If you would like to speak to someone from the support service team, don’t hesitate to reach out. You can find all the ways to contact us here: https://bloodcancer.org.uk/support-for-you/talk-blood-cancer/.

Best Wishes
Bav

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Hi, I just feel I am banging my head against a brick wall. My symptoms are not much worse and the only change to blood was the excessive monocytes at 17.6% and absolute 1014 ml.

I have read that over 10% could be cmml which is very rare I think.

Am awaiting view of haematologist.

My bones in my thighs and ribs is very uncomfortable.

Thanks for asking

Al