Hi there,
I have Chronic lymphocytic leukaemia (CLL) and have just completed Venetoclax after finishing Obinutuzamab last year. Ive been put on review for July as my bloods are all looking good and doing well. I have had a constant cough since Christmas that will not go away. My nose is always running and is cold. No temperature, just a feeling of constantly feeling exhausted and not much energy. Is this normal or should i seek further advice please?
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Hi , am so sorry I can’t say if this is normal or not .Have Chronic lymphocytic leukaemia (CLL) like you but am recently diagnosed and still learning.Also not being medically trained I can’t honestly say .I would get this checked out though
Do you have specialist nurses you can ask?
Mine are really helpful
I am sorry you are feeling so rough , hopefully someone else may be able to to offer more advice than myself . The myriad of things our diagnosis throws at us is really scary sometimes I know
Please Take care of yourself and let us know how you get on
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Hi @Craftyfootsteps welcome to our forum.
@DottieB has given you a brilliant response.
I always believe in letting my GP, specialist nurse or consultant know of any medical issues or symptoms.
Please do let us know how you get on.
Be kind to yourself
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Hi @Craftyfootsteps,
It’s great you have found us! Your cough sounds really frustrating for you and is somewhat familiar as we hear of so many people dealing with this over the winter months. As you may know, those living with blood cancer may be more suspectable to viruses, infections, coughs & colds which can sometimes take a little longer to clear. That being said your symptoms have lasted for quite a few months now so i would encourage you to raise this with your GP if you haven’t already.
There can be so many reasons for a cough, including a post nasal drip, long standing post viral symptoms and really in order to get to the bottom of it and get you feeling better, your GP will be able to advise on next steps.
In case it is useful in any way i have linked here to some NHS information around persistent coughing- Cough - NHS (www.nhs.uk).
Do let us know how you get on, Lauran
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Having a look at side effects to your treatment it does say to let a nurse know if you develop a cough
If you haven’t already I suggest doing so.
I have myeloma and I know my treatment leaves me at risk of lung infections. I’m on co trimoxazole as a precautionary measure
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