I have had a winter virus two years in a row.
Could hardly lift head off the pillow for 36 hours
Oscillating temperatures initially
Zero appetite for 4 weeks
Negative covid test
General fatigue for 4 - 6 weeks
Could this be related to my Chronic lymphocytic leukaemia (CLL) or is it likely to be independent of it?
Hi @OKLondon a great big welcome to our forum, the winter virus that you have had 2 years in a row sounds debilitating.
I will copy your question to the Blood Cancer UK nurse advisors for you @BloodCancerUK_Nurses. It is a good question for your medical team too.
I also have Chronic lymphocytic leukaemia (CLL), and make sure my vaccines are up to date. but I expect, with my compromised immune system, that I will get everything going and it will take me longer to recover from it.
If you would like to talk to the Blood Cancer UK support line on 0808 2080 888 and I also hope some others can share their experiences.
I look forward to hearing more about you.
Look after yourself.
Welcome to the forum, thank you for posting your question.
Sorry to read you have had these symptoms twice now, they certainly don’t sound good. How are you at the moment?
To me this sounds like a flu or virus you’re describing, however, I think you should see a healthcare professional; nurse/GP/Haematologist and at the least get this documented in your notes. May I ask if you had the flu vaccination? It is good to get it documented if you had the vaccine and you still caught a flu virus.
I would also suggest you have some blood tests taken, just to make sure your counts are ‘normal’ for you, and there are no changes in your full blood count, showing anaemia or low white cells. If you are still unwell it might be worth asking for a face to face appointment for a nurse/doctor to listen to your chest and possibly a chest x-ray.
It is difficult to say it is or isn’t your Chronic lymphocytic leukaemia (CLL), but having Chronic lymphocytic leukaemia (CLL) can mean you are more vulnerable to infections.
Do take care of yourself, and let us know how you are doing.
Best wishes, Heidi.
How are you feeling? Are you on the mend?
Were you able to speak to a Doctor or your Haematologist about the symptoms you have had?
Thinking of you and hope you’re better.