I had FCR for SLL in 2019/20 which was stopped due to Covid. Luckily what i had was enough to achieve remission. For the past few months i have been having symptoms. Saw the hematologist yesterday, I have some enlarged nodes and my spleen is also enlarged. They are organising a scan as they think it’s a relapse.
Has anyone relapsed with SLL and what treatment did you have ?
Oh @SP7 that must be scary for you and you must be all over the place.
please let us know how the scan goes.
The waiting is the worst feeling.
Do you know when the scan will be yet?
The Blood Cancer UK support line is there for you.
Please keep posting and look after yourself
I haven’t got a date yet. They said within 2 weeks.
Thinking off you. Please keep us updated x
Well i had my scan on Easter Saturday and saw the haematologist yesterday. My scan was all clear. She said the enlarged nodes and spleen were due to the infections- as a result of chemo/still being immune suppressed.
For those that had FCR how long did the fatigue and other symptoms go on for ?
Hi @SP7. Really good to get an update. You must feel reassured after the scan. Hoping somebody can help with your other questions. How are you feeling about everything? Must have been an anxious time waiting for scan results x
Oh @SP7 I am so glad that your scan was all clear, time for a celebration I say.