On Monday I had double vision for approx 45 minutes. As my mum has had double vision since she was young and my granddaughter also has it, I didn’t think too much about it. I got an appointment with the optician the following day Tuesday. The optician said he was sure it wasn’t as a result of my eyes but he would email the eye and ear hospital for their opinion. On Wednesday I get a phone call from the eye and ear hospital to say they were concerned I might have had a TIA and to go to accident and emergency immediately. I rang the haematology day ward hoping that I could go there but they said no I needed to make my way to A and E . After tests in A and E they said I hadn’t had a stroke, which I knew but they couldn’t rule out a TIA . The hospital have a new TIA clinic to which I have been referred. Liz59
Hi @Liz59 to me it sounds as if all your experiences must have started out as something you did not think too much about to a scary whirlwind.
My husband (who does not have blood cancer) has had 2 of them and for me it is the word TIA that scares me. He is fine now.
Look after yourself and please do let us know how you get on.
Take lots of care and perhaps your family members might like to get themselves checked out as well.
Erica yes it was all very strange going to A and E when I felt well. Thanks so much for your kind words. Never knew anything about TIA before other than a mini stroke. The doctor told me things to watch out for and return to A and E if they return. I have to get further tests to confirm whether or not I had one. Sorry to hear that your husband has had 2 TIAs but glad all is good now.Some good news I was referred to dermatology by my GP for some acitinic keratosis as skin cancer runs in my family just to be sure. As GP thought it is acitinc keratosis and just need to continue treating with cream. I was told by the dermatologist that they are likely to keep recurring so it’s good to know all ok. Best wishes Liz59
Oh @Liz59, I’m so sorry to read of that possible TIA and finding out about it all back-to-front. Perhaps with hindsight it might feel preferable to have experienced it unknowingly?! That would be my preference, or not at all of course! Please rest and ignore stress for now, and keep us posted about your referral to the TIA clinic.
And @Erica your poor husband having experienced TIAs as well! I’m glad he’s fine now but how terrifying for you both. Maybe he’s learnt some great tips from all your expertise in tolerating health worries and supporting others with them?!
Hi @Liz59 I have had skin cancer on the top of my head twice and I look like Friar Tuck/ Worsel Gummidge.
I also have a pre cancerous small patch above my lip which keeps re-occurring.
No family history, as far as I know.
Perhaps listen to your doctors words.
I often laugh that I am under so many hospital departments, apart from maternity.
Really be ever so kind to yourself, you have been through a lot.
Duncan and Erica thanks for your kind words. I know too well the feeling of being under several departments, when possible I try to meet up with friends on appointment days. It makes sense as I am out and about anyway, also makes the day more enjoyable. Erica be kind to yourself too. Best wishes. Liz59
Oh yes I do this too @Liz59, I love a good treat on appointment days
I’m so sorry to read of that recurrence @Erica. How uncanny that you mentioned it though, I just made an appointment for my annual check-up now that I’m photosensitive and at higher risk of skin cancers
Relatedly, something my lovely haematologist reassured me of yesterday is that “Myeloproliferative neoplasms (MPN) don’t cause skin cancer, but hydroxyurea increases risk for easy to treat skin cancers like basal cell and squamous cell carcinomas.”
Duncan Hope all goes well at your annual check up. Best wishes Liz59
I have on my face what my GP thinks is a Basal cell carcinoma. Waiting to here from a dermatologist.
I have always been careful in the sun, I’m one of those who sits under an umbrella on the beach, hat, sunglasses, sun cream etc.
I guess it may be a consequence of over 20 years of treatment with Hydroxycarbamide.
Oh I’m really sorry to read that @Jonpd. I’ll keep my fingers crossed it’s something less worrisome. Slightly heartened to know it’s “easy to treat” according to my non-hyperbolic haematologist.
Another uncanny moment here on this now seemingly global forum, maybe that’s of some small comfort for both you and @Erica ? I’m sorry you both have experiences of this additional health concern.
Like you @Jonpd I’ve never sought out the sun, but ironically I get SAD if I don’t have enough daylight. Thank goodness for dappled shade and better SPFs in both lotions and clothes!
Also like you I may well have decades ahead of taking hydroxyurea, so it’s good to know what to potentially expect. Thank you for sharing such a sensitive subject.
Please keep us posted about how it goes with the dermatologist @Jonpd.
Aww thanks @Liz59, it’s a treat to see my doctor for my annual check-up as she’s so lovely and we catch up about our respective families and gossip a bit
Jonpd hope you do have to wait too long on your dermatologist appointment and that it goes well. Best wishes Liz59
@Duncan on Myeloproliferative neoplasms (MPN) voice there is a video of a recent webinar on MPNs and skin cancer. Well worth a watch.
Thank you so much @Jonpd, very thoughtful of you to share. Just out at the mo so will watch when I’m back home
So excellent @Jonpd, I really appreciate you sharing this. Hasn’t it got loads of great factoids about Myeloproliferative neoplasms (MPN) and skin cancer risks? Really helpful to hear from the doctor of dermatology, especially considering I’m just getting started with that aspect of self-care. Gives me hope for your situation too, with mention of many potential treatments. Lots to think about but I’m glad to know more now, thanks to you. I’ll share it on the blood cancer conference thread as well.
Jonpd just want to say thanks for sharing the webinar. It was very interesting. I hadn’t been told that acitinic keratosis is precancerous so that’s good to know. Best wishes. Liz59
just a follow up. I spent the day in the hospital yesterday having blood tests,ecg, vascular neck scans,examinations and a mri. Result being I have not had a stroke still a slight possible TIA. I was given a holter monitor to wear for 24 hours. The consultant has changed me from aspirin to clopidogerol. Back to the TIA clinic in 6-8 weeks. The consultant was very annoyed that I was not admitted from A and E last week. Best wishes Liz59.
Hi @Liz59 it sounds as if you are now being looked after and I hope that the monitor did not get in the way too much.
Please do keep updating us and really look after and be kind to yourself
Great news that you didn’t have a stroke @Liz59! Thank goodness the suspected TIA wasn’t more serious and that you’re getting checked out fully. Hope you’re getting on okay with the monitor
Erica and Duncan thank you for your kind wishes. I got on ok with the monitor will get results when back to TIA clinic. They seem to think I might have had whats called an occular TIA. Will find out either way in about six weeks. Even if I did it’s over now. Yes I have been checked out fully just not in the time frame the neurologist would have liked. I start the clopidogerol tomorrow so will see how I get on with that.