That sounds so stressful at @Emmaco . I glad you have your union and OH involved. Hopefully something can be sorted. Let us know how you get on x
2 Likes
Its a very stressful and anxious time for us all at the moment but work is one area in my life I enjoy and is routine for me but at the moment everything seems in the air,which has been made worse by the mask situation. Hoping to find out more about my options next week.
2 Likes
Oh, @Emmaco, that really does sound so stressful and is obviously made worse with the mask situation. Please do let us know what happens next week and take care.
1 Like
Fingers crossed for you x
1 Like
As we hear now about new strains of the virus and how it mutates and changes…just got me thinking how people are reacting to it especially with the new more infectious strain we are witnessing now …I honestly think it’s something we have to accept is part of this virus and like other viruses will change over time . The vaccine research will have to continue and progress and am.just happy we at least have some protection and hope …not with standing our own individual conditions as well… just wondered how long we can all go on being locked up for… Even going to the dentist has changed …taking my mum there on Friday… she sees it as a trip.out …Last week the vaccine this week the dentist.
Next week us my blood test week for my three monthly check up. Hope everyone is staying safe …excuse my morning rambles it’s 530 am …back to sleep again.
2 Likes
Hi @Hmc63, yes, you go back to sleep, in the words of the Mamas and Papas ‘the darkest hour is just before dawn’!!
I know what you mean about going to the dentist being a trip out and actually an adventure for me.
Please let us know how your blood tests go and I hope you did get back to sleep.
1 Like
No…not straight away …but if that’s all I have to worry about…going the dentist was fine…just glad it wasn’t snowing . Staff were lovely I usually stay in the waiting room.if I take my mum …bit of a phobia about dentists…they didn’t allow that so ended up in the treatment room …chatting to the dentist and staff while they treated mum… it was nice to talk to some other people . I was masked up gloved up and they clean everything as soon.as you leave… makes you really appreciate the care we get from all the medics Drs dentists nurses auxiliary staff .porters cleaners they are all so important …such lovely people roll on blood tests…Unfortunately got a bad bout of sinus infection so back on more.medication. Something I’ve found since taking Hydroxycarbamide I get bad sinus troubles
Hope everyone is staying safe . In the words of that inspiration Capt Sir Tom Moore things will get better. We hope
2 Likes
Hi @Hmc63, Thanks for your experiences at the dentist.
I had had an appointment booked for a year for my annual check up in July.
I cancelled it a week beforehand as I was shielding, the next day I broke my eye tooth on a piece of brie, no, I have no idea how.
So far it is not hurting, just annoys me and I can see it when I look in the mirror.
I will make an appointment later in this year, I hope.
Yes, every single person working for the caring agencies I’ve found is absolutely wonderful.
I saw on my GP surgery website where I will be going for my vaccine and to await a telephone call.
What adventures I have to look forward to.
2 Likes
I’ve been watching Rob Swanda’s excellent explanation of how the vaccine works. It’s on YouTube. The vaccine seems to rely on the recipient making antibodies against a spike protein in Covid, and on B cell activation so I’d like to find out how effective it would be for me(73yo with follicular lymphoma). Good news that it also seems to activate T killer cells which don’t rely on antibodies. Any biochemists out there that can enlighten me further? I’m trying to learn as much as I can about this.@Strad
3 Likes
Hi @Strad, your post is certainly far too technical for me, perhaps one for your medical team!!!
We will be supporting each other on here through the holiday season, through Covid times and beyond.
I hope you are keeping well and staying safe.
Hi @Strad hope all is okay with you? We can only imagine with the ongoing news about the vaccines- it has understandably brought up many questions for our blood cancer community.
We explore in our recent blog here: The coronavirus vaccine: what people with blood cancer need to know | Blood Cancer UK what such information means in the context of a blood cancer diagnosis, which you may like to have a read through. Though just to say, Strad, we will be updating this blog as we come to know more about such vaccines.
And @Erica says, we would also always encourage people to talk to their treatment teams, for advice more tailored to their individual circumstances, they will always be in a good position given the full picture they have of you.
Please do keep reaching out if you have further questions or there’s anything further you’d like to talk through.
Su
1 Like
Hi All, this is a thread very close to my heart as i am post SCT/AML and now have secondary immunodeficiency syndrome caused by the above, meaning i do not seem to make anti bodies, i am on weekly immunoglobulin infusions. I am now under both heamatology and immunology who have both given me a different answer to whether it is worth me having the vaccine. I made no anti bodies to previous vaccinations post SCT. So i am keen to understand more, its a minefield and sometimes i think with complex patients like us, there just isn’t a clear answer…
1 Like
Hi @trudiA. It sounds as though you have had a very rough time and I do hope you are feeling stronger at the moment.
Keep asking those questions…even though the answers are not clear yet. There is so much more that is known about Covid19 now than there was when we started shielding 9 months ago (seems much longer). I’m optimistic that the huge international research effort that’s going on at the moment will provide our medical teams with the information they need in the coming months. Meanwhile, do look after yourself…and keep asking the questions.
2 Likes
Hi @Strad and @trudiA. Just wondered how you both were doing? Have you registered for the ‘Ask the Experts Session’ on the 6th January? Good place to ask all off your questions.
1 Like
Really hope your discussion with consultant went well and helped you feel more informed. So understandable you’re feeling anxious, you’re certainly not alone in that. Remember we are only at the end of the phone if you want to talk things through. How are you feeling this week?
1 Like
Hi Alice
I spoke to my consultant last week and all is OK. I had my pfizer vaccine yesterday. No problems with it up to now. Just a sore arm. I’m receiving a phonecall today from the NHS wellbeing team regarding my anxiety and issues at work with my hearing/mask. Hope your well.
2 Likes
Great news @Emmaco.
Really hope the phone call today is helpful, really glad you have the opportunity to talk things through with them.
1 Like
Oh, @Emmaco, I am glad you have spoken to your consultant and all is OK.
Wow, I am pleased that you have had your vaccine jab.
Please let us know how your phone call goes with your wellbeing team.
Take care and stay safe.
Let us know how the call goes x
1 Like
Hi all, had my call today. Initially didn’t go great as my connection was rubbish but eventually I got to speak with them. Told them how I was feeling and what had been happening since I last spoke to them which was over a year ago. They are going to call me back with a support plan for the next few weeks to help me get through my anxiety issues whilst I am shielding.
1 Like