Hi I did some blood tests on Wenesday and my blood plaletes has raised to 425. I am healthy and have no medical condition. I called my doctor because i suffer from IBS and have experienced bloating lately. After the blood the results she called me and have referred me to urgent chest XR and unltrasound which is this Monday coming. I had never heard of blood plaletes before and I had been reading online and im going crazy. Im so worried. Is a high plalete count always a sign of cancer as Google says or it can be some infection or allergy ( i have had severe hay fever this year).
Hi Jess, a great big welcome to our community. I am not a medical person and all I would say is too much ‘googling’ is not a good thing for me. When I was diagnosed with blood cancer in 2003 I found a site that gave me 5-10 yrs life expectancy so I immediately wrote my will and funeral music. As you can see I am still here.
I would also say the waiting game is horrible and my mind goes off in all directions, usually the worst scenario. Your appointment is Monday, but results probably a bit after that.
Hang in there and I have found writing down my fears, questions, symptoms and any medical history helps me at appointments. If you need to you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at email@example.com.
Take care, look after yourself and have the odd treats.
Hi Jess. As Erica has said, welcome to this forum. I hope you find support and reassurance here. I am not an expert either but I know that a platelet count of 425 isn’t that high and as far as I am aware is only slightly above the normal range. It may well be that a normal platelet count for you has always been at the higher end of normal. We all have blood cell counts that can vary. Try not to worry too much, although I know that is easier said than done. I wish you well. Please let us know how you get on. Thinking of you. Willow
Me again, @jess and @Willow, my nurse once said to me if we do enough blood tests we will find fluctuations and as @Willow says is so true ‘what is our normal?’ That is why blood tests are often done at regular intervals to see trends. This is often called ‘watch and wait’ or ‘active monitoring’.
Thank you very much for your response. I see you have been through a lot and reading stories like this gives me hope. I hope you will be well.
As you say its too early for me to worry as i havent still done any tests.But its hard not to worry as im still in shock but i hope its nothing serious.
Thank you very much for your reply Willow.
I guess i have to wait and see and try not toworry.
thanks for your support
thanks again Erica. I really hope this is a false alarm and its nothing serios
Hi @jess I hope you’re doing okay. I really hope today goes as well as it can for you and that you get a bit more clarity soon. Please do give us a call on 0808 2080 888 if you want to talk anything through. In case it’s helpful, here’s our web-page around blood counts and https://bloodcancer.org.uk/understanding-blood-cancer/blood-cells/.
Take care and all the best for today.
Thank you for your support. It means a lot to me now.
I went for a ultrasound and chest X ray today.
The nurse that undertook the ultrasound said that ovaries look normal but i had small fibroid on the womb. However she said they will the full result in 5 working days.
I will get the chest x ray results in 7 working days. I dont know what is wrong at the moment. Just waiting and praying.
I wish you well
Its me again
I hope you are all doing well. Does anyone knows anything about fibroids and how serious it can be?
Hi jess on a personal note my wife suffers from ibs so I can on a personal note understand about the condition we thought at first she had pancreatic cancer as she was down to six stone now three years later her weight has returned being on the FODMAP diet as for her pancreas never been an issue I on a personal note have PV and this group is amazing if there’s anything we can help you regarding IBS don’t hesitate we are all here to help you
Thank you for your message. I wish you well and I hope your wife is on a better position now.
I have always suffered from bloatiness after having certain foods and I though that I have IBS but i have never properly checked it. As the GP always says try to eat veggies and exercise so they never fully checked me for any food intolerance or IBS.
I hope they will now check everything after my blood plaletes have elevated.
Thanks for your support
Hi jess on a personal note we had to do our own research the NHS didn’t really have an idea we got in contact with an amazing woman in New Zealand called Suzanne perezinni who put my wife on the fodmap diet which eliminated her tolerances also her books are recommended get them on amazon if there’s anything I can do to help don’t hesitate your going to have to do your research but I got my wife back then dealt a blow when I was diagnosed with PV but hey ho onwards and upwards
Thank you very much Ronald. i will check out the books from Amazon. Much appreciated.
I wish you and your wife well
Hi @jess, hope you’re feeling okay today?
I imagine waiting for the results of your ultrasound and chest x-ray is quite daunting. Have you got much support around you? Really hope you don’t have to wait too long for the results and some clarity on what might be going on.
In case it’s helpful in the meantime there’s some information on the NHS website nn fibroids - https://www.nhs.uk/conditions/fibroids/.
For what it’s worth, Jess, I would be delighted if my platelets were only 425! I have had Essential Thrombocythemia for about 7 years, platelets hover around the 600-650, rather than the recommended 500, but specialist is happy so I am too.
Hi@Alice. I hope you are well. I am ok-ish. I am very scared, anxious and strssed. They said I have to wait 5-7 working days for the results.
This waiting game its stressful. I cant focus on anything. My husband is supporting me as much as he can. My whole family is back home so i cant really tell them how i feel now as they are far away.
Thanks for the NHS link.
I wish you well
Thanks your message. I wish you well.
I am worried as I still dont know what is causing my high blood platletes and my mind thinks of the worse case scenario.
Oh, @jess, yes, the waiting game is so stressful and I am not surprised that you cannot focus on anything. We are here to support you and I find this is the place where I can really share what it is like to be me and I know people will understand as perhaps my nearest and dearest cannot. Also don’t forget the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email firstname.lastname@example.org. Have you asked one of your medical team why your platelets appear high, although @DickM might have reassured you a bit? Please keep posting how you are and when you get your results.
Hi Jess. I see you’ve had a lot of support and reassurance already but I’ve just read this and wanted to add my own. There can be any number of reasons for having raised blood platelets, many of which could be quite innocent. I understand the anxiety of waiting for results but honestly, 425 is actually within the acceptable range, albeit on the high end of the scale. My blood disorder was diagnosed because of high platelets (they were 700+) at the time, and they have on occasion gone up to 1200. And by the way, my blood disorder (myelofibrosis) was diagnosed 30 years ago next month. As for fibroids, they can also turn out to be innocent. I have a couple of small ones and I only know because they were seen on a scan. They give me no trouble at all. This is very very common. Please just try and distract yourself as much as possible and also tell yourself that the tests are excluding things rather than looking for something. It’s just as likely there will be nothing wrong, or at least nothing serious. To repeat - NO a high platelet count is not always a sign of cancer and NO 425 is not that high!! Hope that helps a bit. Take care of yourself xx