I had my dli for mixed chimerism Acute myeloid leukaemia (AML) just over 2 weeks ago . Went for blood tests on Thursday and my neutrophils have dropped to 0.5 , they have around a steady 0.9 since Christmas, all other counts ok. Am I expecting too much to see any improvement so soon and do they sometimes fall before improving?
1 Like
Him @parkrunmark I hope others can share their experiences for you.
However it is best to ask your your medical team who know you and your whole medical history.
I reckon we are all very complex unique beings who can act differently in similar situations.
Also if it is concerning you it is worth asking the questions
How are you feeling and doing, you have a lot going on so take lots of care.
Hi Erica
Thankfully I am still feeling fine physically but obviously quite anxious about what lies ahead . I had my blood test done on Thursday in UHW Cardiff a 140 mile round trip only to get a phone call at 5.35 pm on Friday asking if I can go again on Tuesday for another blood tests as they are worried about my neuts. I asked surely I can go to my local hospital 1 mile away and have blood tests! A definite lack of communication between my 2 teams looking after me. Hopefully I will have a call in the morning to go local. I will keep you posted 
1 Like
Oh @parkrunmark I have found that logic does not come into it sometimes.
Please do let us know how you get on, I will be thinking of you.
Neutrophils slowly rising 0.7 this morning Phew 
2 Likes
Oh, phew, @parkrunmark it really is an emotional rollercoaster
I celebrate all my little wins.
1 Like